Why Do Some People Have Seizures and Others Do Not?

//Why Do Some People Have Seizures and Others Do Not?

Why Do Some People Have Seizures and Others Do Not?

The Modifiers of Fragile X-Associated Disorders (FX-MOD) study is trying to answer the question of why some people with Fragile X syndrome have seizures and others do not, and you can help!

You may be eligible if you have Fragile X syndrome and have had at least one seizure OR if you are a male with Fragile X syndrome who is 17 years or older and have never had a seizure.

Study activities include a medical history review, a blood or saliva sample for whole genome sequencing, and health and well-being questionnaires.

Participants will receive a $25 gift card for a completed blood or saliva sample.

Travel is not required. Participation can take place through the mail.

The study is being conducted by the National Fragile X Center at Emory University.

To be considered for the study, complete the form here to be connected with the study coordinator.

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If you’d like to learn more or apply for this opportunity, please fill out the form to send your contact information to the study coordinators.

By | 2019-03-05T15:44:17+00:00 Mar 5, 2019|Opportunities for families|Comments Off on Why Do Some People Have Seizures and Others Do Not?