The Modifiers of Fragile X-Associated Disorders (FX-MOD) study is trying to answer the question of why some people with Fragile X syndrome have seizures and others do not, and you can help!
You may be eligible if you have Fragile X syndrome and have had at least one seizure OR if you are a male with Fragile X syndrome who is 17 years or older and have never had a seizure.
Study activities include a medical history review, a blood or saliva sample for whole genome sequencing, and health and well-being questionnaires.
Participants will receive a $25 gift card for a completed blood or saliva sample.
Travel is not required. Participation can take place through the mail.
The study is being conducted by the National Fragile X Center at Emory University.
To be considered for the study, complete the form here to be connected with the study coordinator.
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If you’d like to learn more or apply for this opportunity, please fill out the form to send your contact information to the study coordinators.