Why Do Some People Have Seizures and Others Do Not?

//Why Do Some People Have Seizures and Others Do Not?

Why Do Some People Have Seizures and Others Do Not?

The Modifiers of Fragile X-Associated Disorders (FX-MOD) study is trying to answer the question of why some people with Fragile X syndrome have seizures and others do not, and you can help!

You may be eligible if you have Fragile X syndrome and have had at least one seizure OR if you are a male with Fragile X syndrome who is 17 years or older and have never had a seizure.

Study activities include a medical history review, a blood or saliva sample for whole genome sequencing, and health and well-being questionnaires.

Participants will receive a $25 gift card for a completed blood or saliva sample.

Travel is not required. Participation can take place through the mail.

The study is being conducted by the National Fragile X Center at Emory University.

To be considered for the study, complete the form here to be connected with the study coordinator.

View More Opportunites

Study: FX-LEARN – Language Learning in Children with FXS

Mar 27, 2019|

Research Study on Language and Brain Imaging

Mar 11, 2019|

Why Do Some People Have Seizures and Others Do Not?

Mar 5, 2019|

Survey on Guardianship of Individuals with Fragile X Syndrome

Mar 1, 2019|

Boston Children’s Hospital Study: Neural Markers in Fragile X Syndrome

Feb 20, 2019|

Memory Study on Fragile X Syndrome

Feb 11, 2019|

ROCKET Fragile X Syndrome Clinical Study

Feb 1, 2019|

Study: Fragile X Syndrome at NIH

Jan 3, 2019|

VIEW ALL

If you’d like to learn more or apply for this opportunity, please fill out the form to send your contact information to the study coordinators.

By | 2019-03-29T14:27:43+00:00 Mar 5, 2019|Opportunities for families|Comments Off on Why Do Some People Have Seizures and Others Do Not?