Who Can Participate?
- Boys with a diagnosis of fragile X syndrome
- Aged 2 to 10 years, inclusive
- Shows disruptive behaviors (e.g., aggression, self-injury, property destruction)
What Participation Involves:
- Completing questionnaires about your child’s behavior every 4 weeks for 16 weeks
- Randomization to observation or in-home treatment
What are the Benefits of Participating?
- Potential improvement in your child’s disruptive behaviors
- Increased understanding of your child’s behavior
- An honorarium of up to $200 for participation
Complete the survey below to determine your son’s eligibility.
For more information please contact:
For participants’ rights, contact the IRB at 1-866-680-2906
Our Most Recent Opportunities
The Development in Neurogenetic Disorders Lab at the University of Illinois at Urbana-Champaign is conducting a research study to learn about what skills support early language development.
Parents or caregivers of individuals with Fragile X syndrome who has received services via telehealth during the COVID-19 pandemic may be eligible to participate.
Individuals with FXS who are 18 years or older and able to talk fluently about own experiences, and their caregivers and providers may be eligible to participate. Eligible providers include teachers, psychologists, social workers, and physicians.
NFXF has partnered with an advisory committee of international fragile X professionals to create an international fragile X premutation research registry. Find out how to participate.
Participants of this study will explore what information is considered most important to recently diagnosed fragile X premutation carriers. Open to premutation carriers 18 and over who were diagnosed sometime since January 2018.
Kaylynn Shuleski, a master’s in genetic counseling candidate, is conducting a research study to explore the concerns and challenges caregivers may face when planning long-term supports and living arrangements for their adult children with Fragile X syndrome (FXS). This information will be valuable for current and future families when considering long-term supports, as well as for healthcare professionals, counselors, and policy makers. About the Study Who can participate? Parents and caregivers of adults with full mutation ...