Who Can Participate?

  • Boys with a diagnosis of fragile X syndrome
  • Aged 2 to 10 years, inclusive
  • Shows disruptive behaviors (e.g., aggression, self-injury, property destruction)

What Participation Involves:

  • Completing questionnaires about your child’s behavior every 4 weeks for 16 weeks
  • Randomization to observation or in-home treatment

What are the Benefits of Participating?

  • Potential improvement in your child’s disruptive behaviors
  • Increased understanding of your child’s behavior
  • An honorarium of up to $200 for participation

Complete the survey below to determine your son’s eligibility.

For more information please contact:
Katerina Monlux
650-422-1032
kmonlux@stanford.edu

For participants’ rights, contact the IRB at 1-866-680-2906

TAKE THE APPLICATION SURVEY
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Parents and Caregivers of Adults with Fragile X Syndrome Needed for a Survey

Kaylynn Shuleski, a master’s in genetic counseling candidate, is conducting a research study to explore the concerns and challenges caregivers may face when planning long-term supports and living arrangements for their adult children with Fragile X syndrome (FXS). This information will be valuable for current and future families when considering long-term supports, as well as for healthcare professionals, counselors, and policy makers.  About the Study Who can participate? Parents and caregivers of adults with full mutation ...