Who Can Participate?
- Boys with a diagnosis of fragile X syndrome
- Aged 2 to 10 years, inclusive
- Shows disruptive behaviors (e.g., aggression, self-injury, property destruction)
What Participation Involves:
- Completing questionnaires about your child’s behavior every 4 weeks for 16 weeks
- Randomization to observation or in-home treatment
What are the Benefits of Participating?
- Potential improvement in your child’s disruptive behaviors
- Increased understanding of your child’s behavior
- An honorarium of up to $200 for participation
Complete the survey below to determine your son’s eligibility.
For more information please contact:
Katerina Monlux
650-422-1032
kmonlux@stanford.edu
For participants’ rights, contact the IRB at 1-866-680-2906
Our Most Recent Opportunities
Study: Aging in Mothers who Carry the FMR1 Premutation
The University of South Carolina is conducting a research study to learn about healthy aging in women who carry the FMR1 premutation.
Study: iBehavior- A Novel Behavior Tracking App Study for individuals with Fragile X syndrome
The T-PAL Lab at the UC Davis MIND Institute is conducting a research study to learn about how we can best measure your child’s behavioral and cognitive functioning in their day-to-day life. Using an iPhone or Android based mobile app at your convenience, you will record your child’s behavior daily for up to 3 weeks. About the Study Who can participate? Parents with a child 5-17 years old with a [...]
Study: Transitioning to Adulthood with Fragile X syndrome
University of Kansas’ LifeSpan Institute is conducting research to learn about the transition to adulthood for individuals with Fragile X syndrome, as well as the experiences of parents of these young adults.
Study: Autonomic and Sensory Functioning in Infants with FMR1 Conditions
Dr. Jane Roberts and the research staff at the Neurodevelopmental Disorders Laboratory at USC are conducting a research study to learn about the development of infants with Fragile X syndrome and Fragile X premutation over the first few years of life.
Survey: Research Experiences in Fragile X Families
The Brain and Biomarker Lab at the University of Oklahoma is conducting a survey to learn about experiences with research, particularly biomedical research, in families with Fragile X syndrome (FXS).
Study: Language Study for Children and Adolescents with Fragile X syndrome
Researchers at the University of Wisconsin-Madison and the University of Massachusetts-Amherst are conducting a study to learn about links between learning and language in Fragile X syndrome.