Who Can Participate?

  • Boys with a diagnosis of fragile X syndrome
  • Aged 2 to 10 years, inclusive
  • Shows disruptive behaviors (e.g., aggression, self-injury, property destruction)

What Participation Involves:

  • Completing questionnaires about your child’s behavior every 4 weeks for 16 weeks
  • Randomization to observation or in-home treatment

What are the Benefits of Participating?

  • Potential improvement in your child’s disruptive behaviors
  • Increased understanding of your child’s behavior
  • An honorarium of up to $200 for participation

Complete the survey below to determine your son’s eligibility.

For more information please contact:
Katerina Monlux
650-422-1032
kmonlux@stanford.edu

For participants’ rights, contact the IRB at 1-866-680-2906

TAKE THE APPLICATION SURVEY
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View More Opportunities

Parent Survey: Children’s Behavioral Strengths and Challenges

The MIND Group at the University of Minnesota is conducting a survey for parents of children with Fragile X syndrome to learn about how genetic and neurodevelopmental differences impact behavioral strengths and challenges. Parents of 3–17 year old children living with Fragile X are eligible to participate.

Study: Language Environment Analysis Project (LEAP)

Purdue University is conducting a research study to learn about language and social communication development in Fragile X syndrome. Children ages 3–4 years (36–60 months) with the full mutation may be eligible to participate.

Purdue Early Childhood Study – PANDABox

Purdue University is conducting a research study to learn about development of infants with Fragile X syndrome. Boys and girls ages 6-18 months with the full mutation may be eligible to participate.

Fragile X Premutation Carrier Study at University of Kansas

The University of Kansas BRAIN Lab is conducting a research study to learn about behavioral and brain differences associated with premutations of the Fragile X gene, FMR1. Individuals ages 50–80 with the FMR1 gene premutation with or without FXTAS may be eligible to participate.