Who Can Participate?
- Boys with a diagnosis of fragile X syndrome
- Aged 2 to 10 years, inclusive
- Shows disruptive behaviors (e.g., aggression, self-injury, property destruction)
What Participation Involves:
- Completing questionnaires about your child’s behavior every 4 weeks for 16 weeks
- Randomization to observation or in-home treatment
What are the Benefits of Participating?
- Potential improvement in your child’s disruptive behaviors
- Increased understanding of your child’s behavior
- An honorarium of up to $200 for participation
Complete the survey below to determine your son’s eligibility.
For more information please contact:
For participants’ rights, contact the IRB at 1-866-680-2906
View More Opportunities
An Alliant International University clinical psychology doctoral candidate is conducting a research study to learn about the cognitive profile of children with a full mutation of Fragile X. Males and transgender females between the age of 8 and 12 may be eligible to participate.
The MIND Group at the University of Minnesota is conducting a survey for parents of children with Fragile X syndrome to learn about how genetic and neurodevelopmental differences impact behavioral strengths and challenges. Parents of 3–17 year old children living with Fragile X are eligible to participate.
Purdue University is conducting a research study to learn about language and social communication development in Fragile X syndrome. Children ages 3–4 years (36–60 months) with the full mutation may be eligible to participate.
The University of Kansas Medical Center is conducting a survey to learn about the medical and mental health care needs of individuals and families affected by Fragile X syndrome, premutation carriers, and undiagnosed family members. Persons 18 years and over may be eligible.
The University of Kansas BRAIN Lab is conducting a research study to learn about behavioral and brain differences associated with premutations of the Fragile X gene, FMR1. Individuals ages 50–80 with the FMR1 gene premutation with or without FXTAS may be eligible to participate.