Who Can Participate?

  • Boys with a diagnosis of fragile X syndrome
  • Aged 2 to 10 years, inclusive
  • Shows disruptive behaviors (e.g., aggression, self-injury, property destruction)

What Participation Involves:

  • Completing questionnaires about your child’s behavior every 4 weeks for 16 weeks
  • Randomization to observation or in-home treatment

What are the Benefits of Participating?

  • Potential improvement in your child’s disruptive behaviors
  • Increased understanding of your child’s behavior
  • An honorarium of up to $200 for participation

Complete the survey below to determine your son’s eligibility.

For more information please contact:
Katerina Monlux
650-422-1032
kmonlux@stanford.edu

For participants’ rights, contact the IRB at 1-866-680-2906

TAKE THE APPLICATION SURVEY
Our Most Recent Opportunities
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Study: Parent-Infant Fragile X Intervention (PIXI)

RTI International and the University of North Carolina at Chapel Hill are conducting an early intervention study to learn about the best ways to support early development in infants identified with the full mutation of Fragile X. Babies 0–9 months old with the full mutation, and their caregivers, may be eligible to participate.

Study: Our Fragile X World Registry

Our Fragile X World collects data from families using online surveys and in-person studies. Topics covered include sensory or behavioral challenges, health care experiences, and the impact of Fragile X on families.

Fragile X Premutation Carrier Study at USC

The University of South Carolina is conducting a research study focusing on the range of language, social, and cognitive features that may be associated with variations on the FMR1 gene. Women age 35-75 who are carriers of the Fragile X premutation may be eligible to participate.

Parent Survey: Children’s Behavioral Strengths and Challenges

The MIND Group at the University of Minnesota is conducting a survey for parents of children with Fragile X syndrome to learn about how genetic and neurodevelopmental differences impact behavioral strengths and challenges. Parents of 3–17 year old children living with Fragile X are eligible to participate.