The UC Davis MIND Institute is currently recruiting research participants for their Family Relationships and Parenting of Children with FXS study. The study’s goal is to better understand the ways in which characteristics of mothers and fathers and relationships within the family influence the language learning environment of young boys with Fragile X syndrome.
Boys with Fragile X syndrome between the ages of 3 and 7 years old and their fathers and biological mothers.
- Boys with Fragile X syndrome: Ages 3 yrs./0 mos. to 7 yrs./11 mos.
- Biological parents: Ages 18+
Families will participate in this study from their homes via distance video teleconferencing sessions and online surveys. Mothers and fathers will be asked to complete a combination of questionnaires and interviews; and will each engage in play-based interactions with their child.
- Sessions: 5 sessions over the course of approximately 2 weeks
- Session Length: Will vary between approximately 30 minutes to 2 hours
Upon completion of the study, each family will be offered a one-on-one session with the speech-language pathologist leading the study to discuss evidence-based parent strategies for engaging in interactions with the child that will foster communication development.