Using Telehealth to Reduce Problem Behavior and Improve Maternal Mental Health

Free Treatment Study!

Are you a mother of a child with Fragile X Syndrome? Would you like free parent training?

At St. John’s University, we are conducting a research study on the effectiveness of a parent training program for parents of children with Fragile X syndrome. We are currently seeking mothers to volunteer to participate in this parent training program.

This study might be right for you if:

  • You are the mother of a child who has Fragile X syndrome (full mutation)
  • Children are between the ages of 3 and 12 years old.
  • You and your child live in the same home.
  • Your child displays serious challenging behaviors such as physical aggression, self- injury, property destruction, or non-compliance.

The potential benefits of the study are:

  • You may increase your knowledge of your child’s challenging behaviors and empirically supported strategies for addressing challenging behaviors.
  • The parent training program may also benefit you by helping you to reduce your child’s challenging behaviors and improve your family’s quality of life.

For more information on this study or to request a screening packet, please contact:

Ms. Carmen Mootz, M.A.
Principal Investigator
916-804-1985
carmen.mootz14@stjohns.edu

or her faculty sponsor:
Dr. Lauren Moskowitz, Ph.D.
718-990-6418
moskowil@stjohns.edu

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View More Opportunities

Parent Survey: Children’s Behavioral Strengths and Challenges

The MIND Group at the University of Minnesota is conducting a survey for parents of children with Fragile X syndrome to learn about how genetic and neurodevelopmental differences impact behavioral strengths and challenges. Parents of 3–17 year old children living with Fragile X are eligible to participate.

Study: Language Environment Analysis Project (LEAP)

Purdue University is conducting a research study to learn about language and social communication development in Fragile X syndrome. Children ages 3–4 years (36–60 months) with the full mutation may be eligible to participate.

Purdue Early Childhood Study – PANDABox

Purdue University is conducting a research study to learn about development of infants with Fragile X syndrome. Boys and girls ages 6-18 months with the full mutation may be eligible to participate.

Fragile X Premutation Carrier Study at University of Kansas

The University of Kansas BRAIN Lab is conducting a research study to learn about behavioral and brain differences associated with premutations of the Fragile X gene, FMR1. Individuals ages 50–80 with the FMR1 gene premutation with or without FXTAS may be eligible to participate.