Using Telehealth to Reduce Problem Behavior and Improve Maternal Mental Health
Free Treatment Study!
Are you a mother of a child with Fragile X Syndrome? Would you like free parent training?
At St. John’s University, we are conducting a research study on the effectiveness of a parent training program for parents of children with Fragile X syndrome. We are currently seeking mothers to volunteer to participate in this parent training program.
This study might be right for you if:
- You are the mother of a child who has Fragile X syndrome (full mutation)
- Children are between the ages of 3 and 12 years old.
- You and your child live in the same home.
- Your child displays serious challenging behaviors such as physical aggression, self- injury, property destruction, or non-compliance.
The potential benefits of the study are:
- You may increase your knowledge of your child’s challenging behaviors and empirically supported strategies for addressing challenging behaviors.
- The parent training program may also benefit you by helping you to reduce your child’s challenging behaviors and improve your family’s quality of life.
For more information on this study or to request a screening packet, please contact:
Ms. Carmen Mootz, M.A.
Principal Investigator
916-804-1985
carmen.mootz14@stjohns.edu
Or Ms. Mootz’s faculty sponsor:
Dr. Lauren Moskowitz, Ph.D.
718-990-6418
moskowil@stjohns.edu
Our Most Recent Opportunities
IMPACT-FXS: Investigating Multiple Pathways And Combined Treatments for FXS
Healx is conducting a Phase 2, placebo-controlled study in adolescent and adult males with fragile X syndrome (FXS). The purpose of this study is to confirm whether Healx's drug candidates are safe and work as intended to reduce symptoms of FXS.
Survey: Developing a Gold Standard for Tracking Adult Functional Outcomes in Developmental Disabilities (AFS Study)
University of Pittsburgh is conducting this research to develop the Adult Functioning Scale (AFS), a new survey being designed to capture outcomes in the areas of social functioning, employment, independence, and satisfaction for individuals with various developmental disorders.
Study: Aging in Toolbox
Researchers around the country are conducting a study to better understand cognitive profiles in adults with intellectual disability. This study is an extension of the ongoing Toolbox Study, which is aimed to optimize cognitive assessment tools for children and young adults with intellectual disabilities.
Conference Research Opportunity: Validation of Fragile X-Associated Tremor Ataxia Syndrome Rating Scale (FXTAS-RS)
Rush University is conducting a research study to validate a rating scale created to assess the motor symptoms of people with FXTAS – the “Fragile X-Associated Tremor Ataxia Syndrome Rating Scale (FXTAS-RS)”
Study: Connection between Cognition and Genetic Factors in Adults with FXS
Drs. Craig Erickson and Lauren Schmitt at Cincinnati Children’s Hospital are conducting a series of research studies to learn about the brain and cognition and how they are connected with genetic factors related to FXS.
Study: UNC Brain Development Research Study of Infants with Fragile X Syndrome
UNC Chapel Hill is conducting a research study to learn about the early brain and behavioral development of infants with FXS to aid in the future development of better supports and treatments.