St. John’s Study: Positive Family Intervention for Families of Children with Fragile X Syndrome

/, Research/St. John’s Study: Positive Family Intervention for Families of Children with Fragile X Syndrome

St. John’s Study: Positive Family Intervention for Families of Children with Fragile X Syndrome

Using Telehealth to Reduce Problem Behavior and Improve Maternal Mental Health

Free Treatment Study!

Are you a mother of a child with Fragile X Syndrome? Would you like free parent training?

At St. John’s University, we are conducting a research study on the effectiveness of a parent training program for parents of children with Fragile X syndrome. We are currently seeking mothers to volunteer to participate in this parent training program.

This study might be right for you if:

  • You are the mother of a child who has Fragile X syndrome (full mutation)
  • Children are between the ages of 3 and 12 years old.
  • You and your child live in the same home.
  • Your child displays serious challenging behaviors such as physical aggression, self- injury, property destruction, or non-compliance.

The potential benefits of the study are:

  • You may increase your knowledge of your child’s challenging behaviors and empirically supported strategies for addressing challenging behaviors.
  • The parent training program may also benefit you by helping you to reduce your child’s challenging behaviors and improve your family’s quality of life.

For more information on this study or to request a screening packet, please contact:

Ms. Carmen Mootz, M.A.
Principal Investigator
916-804-1985
carmen.mootz14@stjohns.edu

or her faculty sponsor:
Dr. Lauren Moskowitz, Ph.D.
718-990-6418
moskowil@stjohns.edu

If you arrived on this page through a MyFXResearch Portal search, you can close this window and return to your filtered results. Or start a new search here.
View More Opportunities

View All

Study: Family Relationships and Parenting of Children with FXS

The UC Davis MIND Institute is currently recruiting study research participants. The study’s goal is to better understand the ways in which characteristics of mothers and fathers and relationships within the family influence the language learning environment of young boys with Fragile X syndrome.

Survey: Needs and Experiences of Families with Young Children with Fragile X

This survey will help support families in the Early Check study in NC whose newborns have been diagnosed with Fragile X and inform the design of an early intervention program for these babies.

Early Development of Young Children with Fragile X in North Carolina

RTI Int’l and UNC at Chapel Hill are conducting a research study to learn more about early development of young children with Fragile X in North Carolina, and the experiences of their parents when obtaining the diagnosis and early intervention services.

Metformin in Individuals with Fragile X Syndrome

We have preliminary evidence that metformin, a common type 2 diabetes medication, is beneficial for language, cognition, and behavior in both children and adults with Fragile X Syndrome.

Describing Anxiety for People with Fragile X Syndrome

A survey to measure levels of behavior. When someone with FXS is experiencing anxiety, describe what you see and hear, and how the experience impacts your/their quality of life.

Visual Perception Study

Our research is looking at how you see and remember the visual world, and how attention changes what we see. We hope our findings will provide a better understanding of the differences in vision and attention occurring in autism.

By | 2019-07-16T15:31:20+00:00 Apr 5, 2018|Opportunities for families, Research|Comments Off on St. John’s Study: Positive Family Intervention for Families of Children with Fragile X Syndrome