Using Telehealth to Reduce Problem Behavior and Improve Maternal Mental Health

Free Treatment Study!

Are you a mother of a child with Fragile X Syndrome? Would you like free parent training?

At St. John’s University, we are conducting a research study on the effectiveness of a parent training program for parents of children with Fragile X syndrome. We are currently seeking mothers to volunteer to participate in this parent training program.

This study might be right for you if:

  • You are the mother of a child who has Fragile X syndrome (full mutation)
  • Children are between the ages of 3 and 12 years old.
  • You and your child live in the same home.
  • Your child displays serious challenging behaviors such as physical aggression, self- injury, property destruction, or non-compliance.

The potential benefits of the study are:

  • You may increase your knowledge of your child’s challenging behaviors and empirically supported strategies for addressing challenging behaviors.
  • The parent training program may also benefit you by helping you to reduce your child’s challenging behaviors and improve your family’s quality of life.

For more information on this study or to request a screening packet, please contact:

Ms. Carmen Mootz, M.A.
Principal Investigator
916-804-1985
carmen.mootz14@stjohns.edu

or her faculty sponsor:
Dr. Lauren Moskowitz, Ph.D.
718-990-6418
moskowil@stjohns.edu

Our Most Recent Opportunities
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PIXI Study: Parent-Infant Fragile X Intervention

RTI International and the University of North Carolina at Chapel Hill are conducting an early intervention study to learn about the best ways to support early development in infants identified with the full mutation of Fragile X. Babies 0–9 months old with the full mutation, and their caregivers, may be eligible to participate.

Study: Our Fragile X World Registry

Our Fragile X World collects data from families using online surveys and in-person studies. Topics covered include sensory or behavioral challenges, health care experiences, and the impact of Fragile X on families.

Fragile X Premutation Carrier Study at USC

The University of South Carolina is conducting a research study focusing on the range of language, social, and cognitive features that may be associated with variations on the FMR1 gene. Women age 35-75 who are carriers of the Fragile X premutation may be eligible to participate.

Parent Survey: Children’s Behavioral Strengths and Challenges

The MIND Group at the University of Minnesota is conducting a survey for parents of children with Fragile X syndrome to learn about how genetic and neurodevelopmental differences impact behavioral strengths and challenges. Parents of 3–17 year old children living with Fragile X are eligible to participate.