Using Telehealth to Reduce Problem Behavior and Improve Maternal Mental Health
Free Treatment Study!
Are you a mother of a child with Fragile X Syndrome? Would you like free parent training?
At St. John’s University, we are conducting a research study on the effectiveness of a parent training program for parents of children with Fragile X syndrome. We are currently seeking mothers to volunteer to participate in this parent training program.
This study might be right for you if:
- You are the mother of a child who has Fragile X syndrome (full mutation)
- Children are between the ages of 3 and 12 years old.
- You and your child live in the same home.
- Your child displays serious challenging behaviors such as physical aggression, self- injury, property destruction, or non-compliance.
The potential benefits of the study are:
- You may increase your knowledge of your child’s challenging behaviors and empirically supported strategies for addressing challenging behaviors.
- The parent training program may also benefit you by helping you to reduce your child’s challenging behaviors and improve your family’s quality of life.
For more information on this study or to request a screening packet, please contact:
Ms. Carmen Mootz, M.A.
Or Ms. Mootz’s faculty sponsor:
Dr. Lauren Moskowitz, Ph.D.
Our Most Recent Opportunities
Study: Aging in Mothers who Carry the FMR1 Premutation
The University of South Carolina is conducting a research study to learn about healthy aging in women who carry the FMR1 premutation.
Study: iBehavior- A Novel Behavior Tracking App Study for individuals with Fragile X syndrome
The T-PAL Lab at the UC Davis MIND Institute is conducting a research study to learn about how we can best measure your child’s behavioral and cognitive functioning in their day-to-day life. Using an iPhone or Android based mobile app at your convenience, you will record your child’s behavior daily for up to 3 weeks. About the Study Who can participate? Parents with a child 5-17 years old with a [...]
Study: Transitioning to Adulthood with Fragile X syndrome
University of Kansas’ LifeSpan Institute is conducting research to learn about the transition to adulthood for individuals with Fragile X syndrome, as well as the experiences of parents of these young adults.
Study: Autonomic and Sensory Functioning in Infants with FMR1 Conditions
Dr. Jane Roberts and the research staff at the Neurodevelopmental Disorders Laboratory at USC are conducting a research study to learn about the development of infants with Fragile X syndrome and Fragile X premutation over the first few years of life.
Survey: Research Experiences in Fragile X Families
The Brain and Biomarker Lab at the University of Oklahoma is conducting a survey to learn about experiences with research, particularly biomedical research, in families with Fragile X syndrome (FXS).
Study: Language Study for Children and Adolescents with Fragile X syndrome
Researchers at the University of Wisconsin-Madison and the University of Massachusetts-Amherst are conducting a study to learn about links between learning and language in Fragile X syndrome.