• Shop
  • Contact

Study of Reproductive Decision Making

Study of Reproductive Decision Making

Stony Brook University and The New School for Social Research are conducting a study for women and men who have had a son/daughter with a genetic childhood disorder and/or are at risk for having a child with a genetic disorder, including Fragile X syndrome. The focus of the study is a recent consideration of reproductive options, like becoming pregnant or using amniocentesis or visiting a fertility specialist or deciding not to have future kids, etc.

The complexity and options for reproductive genetic testing are increasing rapidly. There are many options both before and during pregnancy, and the technology is changing. They are studying the reproductive decision-making process of individuals such as yourself. Participation in this research involves an anonymous online survey. It takes about 25 minutes to complete the questionnaire, and it can be completed in more than one sitting.

Upon completing the survey you can enter a raffle to win a $50 Amazon gift card! One will be drawn out of every 50 people who complete the questionnaire. An email address is required for entry into the raffle, so that Amazon can send it to you.

MORE INFO AND TAKE THE SURVEY
If you arrived on this page through a MyFXResearch Portal search, you can close this window and return to your filtered results. Or start a new search here.
View More Opportunities

View All

Metformin in Individuals with Fragile X Syndrome

We have preliminary evidence that metformin, a common type 2 diabetes medication, is beneficial for language, cognition, and behavior in both children and adults with Fragile X Syndrome.

Describing Anxiety for People with Fragile X Syndrome

A survey to measure levels of behavior. When someone with FXS is experiencing anxiety, describe what you see and hear, and how the experience impacts your/their quality of life.

Visual Perception Study

Our research is looking at how you see and remember the visual world, and how attention changes what we see. We hope our findings will provide a better understanding of the differences in vision and attention occurring in autism.

Purdue University: Brain and Behavior Study

Our goal is to better understand the different mechanisms within the brain that contribute to the development of psychiatric conditions, including depression, so we can establish better prevention and intervention efforts within this population.

Study of Reproductive Decision Making

This is a voluntary, and completely anonymous, research survey for women and men who have had a child, or at risk of having a child, with a genetic childhood disorder.​​

Study on Language Development in Young Adults with Fragile X Syndrome

The goal of the study is to learn more about how certain abilities, types of experiences, and biology affect language abilities in adulthood for both males and females with Fragile X syndrome.

By | 2019-07-16T19:02:29+00:00 Jun 11, 2019|Opportunities for families|Comments Off on Study of Reproductive Decision Making

1861 International Drive Suite 200, McLean, VA 22102, (800) 688-8765

Privacy Policy | Powered by PRI

Copyright © 2019 National Fragile X Foundation

en English
af Afrikaanssq Albanianam Amharicar Arabichy Armenianaz Azerbaijanieu Basquebe Belarusianbn Bengalibs Bosnianbg Bulgarianca Catalanceb Cebuanony Chichewazh-CN Chinese (Simplified)zh-TW Chinese (Traditional)co Corsicanhr Croatiancs Czechda Danishnl Dutchen Englisheo Esperantoet Estoniantl Filipinofi Finnishfr Frenchfy Frisiangl Galicianka Georgiande Germanel Greekgu Gujaratiht Haitian Creoleha Hausahaw Hawaiianiw Hebrewhi Hindihmn Hmonghu Hungarianis Icelandicig Igboid Indonesianga Irishit Italianja Japanesejw Javanesekn Kannadakk Kazakhkm Khmerko Koreanku Kurdish (Kurmanji)ky Kyrgyzlo Laolv Latvianlt Lithuanianlb Luxembourgishmk Macedonianmg Malagasyms Malayml Malayalammt Maltesemi Maorimr Marathimn Mongolianmy Myanmar (Burmese)ne Nepalino Norwegianps Pashtofa Persianpl Polishpt Portuguesepa Punjabiro Romanianru Russiansm Samoangd Scottish Gaelicsr Serbianst Sesothosn Shonasd Sindhisi Sinhalask Slovaksl Slovenianso Somalies Spanishsu Sudanesesw Swahilisv Swedishtg Tajikta Tamilte Teluguth Thaitr Turkishuk Ukrainianur Urduuz Uzbekvi Vietnamesecy Welshxh Xhosayi Yiddishyo Yorubazu Zulu