Northwest Region

Clarkston, Washington


Wendy Geiger

Susan Slatter

Recent Happenings

Jay Souder Takes On New Role as NFXF Ambassador

With his board term now concluded, Jay has graciously stepped into our first-ever NFXF Ambassador position, helping us further build on the many relationships he established during his tenure.
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Advocacy Day Social Story

Our own Jayne Dixon Weber pulled together a social story to use to help you and your self-advocate prepare for the NFXF Advocacy Day on February 24, 2021.
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The Fragile X Premutation Registry is Now International

When we first launched the registry in November 2020, we weren’t yet able to accept non-U.S. registrants. There’s a lot of regulations and standards to work through on a project like this, but now we are truly living up to our name!
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What are Federal Budgets and Why They Matter

What is the President's budget, is it important for Fragile X advocacy, and how does Fragile X research get funded? These are all answered here.
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Upcoming Events

We are looking for volunteers to help organize events, if you are interested in joining our group and assisting with events, please contact us at