Press Releases

  • FOR IMMEDIATE RELEASE Tony Ferlanda, CEO 315-382-1090 tony@fragilex.org fragilex.org Accelerating Research into Treatments and Cures of Leading Inherited Cause of Intellectual Disability Washington, DC (February 6, 2017) – The National Fragile X Foundation (NFXF) announces the launch of the NFXF Biobank™, the first major project of the NFXF Collaborative Biomarker Research Program. This initiative will drive faster and more efficient research into treatments and a cure for fragile X syndrome, the leading inherited cause of intellectual disability and the leading known single gene cause of autism. Biological samples will be collected from volunteer participants from the Fragile X... » FULL ARTICLE

    Posted on February 6, 2017 | Categories : Press Release | Comments Off on National Fragile X Foundation Launches NFXF Biobank™
  • (Berlin/Sacramento) The International Fragile X Alliance (IFXA), a global network of Fragile X parent support organizations, was launched on February 29, 2016. IFXA will work to improve the life situation of people with the most common inherited form of intellectual disability, Fragile X Syndrome, as well as other Fragile X-associated Disorders. » FULL ARTICLE

    Posted on March 16, 2016 | Categories : Press Release | Comments Off on International Fragile X Alliance Launched
  • The National Fragile X Foundation (NFXF), the world’s leading advocacy organization for people affected by all Fragile X-associated Disorders, has named Tony Ferlenda as chief executive officer. » FULL ARTICLE

    Posted on August 19, 2014 | Categories : Press Release | Comments Off on Tony Ferlenda named CEO at the National Fragile X Foundation
  • The month of July is National Fragile X Awareness Month, an extension of Fragile X Awareness Day (July 22), which is officially recognized by Congress to increase awareness and advocacy for Fragile X. Fragile X syndrome (FXS) is the most common cause of inherited intellectual disability and the most common known genetic cause of autism. Individuals with FXS can experience developmental delays ranging from mild to severe. » FULL ARTICLE

    Posted on July 1, 2014 | Categories : Press Release | Comments Off on National Fragile X Foundation Announces Fragile X Awareness Month 2014
  • FOR IMMEDIATE RELEASE Ted Coutilish (734) 320-7981 tcoutilish@fragilex.org www.fragilex.org (Walnut Creek, CA, October 12, 2013) The National Fragile X Foundation Board of Directors has named Jeffrey Cohen as interim executive director. “We are fortunate Jeff has accepted this role,” NFXF Board President Brad Whitus said. “As a past board president and current Foundation Director of Government Affairs and Advocacy, he is very knowledgeable, widely respected, trusted and admired within the Fragile X community, and is an outstanding advocate. We are excited to move forward seamlessly under his leadership.” Cohen succeeds Robby Miller, who joined the NFXF as executive director in... » FULL ARTICLE

    Posted on October 12, 2013 | Categories : Press Release | Comments Off on Jeffrey Cohen to Lead World’s Leading Authority on Fragile X
  • Later this spring, Congressman Greg Harper (R-MS) and the National Fragile X Foundation will host a Congressional Roundtable to explore how best to realize the full potential of these research breakthroughs linking Fragile X and autism. The White House clearly sees this potential as well, as the proposed $100 million brain mapping project will only accelerate the pace at which Fragile X and autism will be conquered. » FULL ARTICLE

    Posted on April 10, 2013 | Categories : Press Release | Comments Off on Is Fragile X the Key to Unlocking the Mystery of Autism?
  • As scientists uncover the precise links between autism and the Fragile X gene, potential treatments to reverse many of the core symptoms of both autism and fragile X syndrome (FXS) are moving closer to reality. » FULL ARTICLE

    Posted on February 27, 2013 | Categories : Advocacy,Press Release | Comments Off on Ground-breaking Genetic Research Gives Hope for Potential Treatment of Autism’s Core Symptoms
  • FOR IMMEDIATE RELEASE Contact: Robert Miller 925-938-9300 robmiller@fragilex.org www.fragilex.org Recent findings regarding Fragile X are being discussed at the 13th International Fragile X Conference in Miami. These include that many of the approximately one million carriers of the Fragile X (FX) gene premutation in the U.S., previously believed to be spared from consequences of the mutation responsible for fragile X syndrome (FXS), appear to be at increased risk for development of several significant and adverse health conditions such as: psychological, neurological and auto-immune problems in addition to the already recognized conditions of: fragile X-associated tremor/ataxia syndrome (FXTAS), a debilitating neurological... » FULL ARTICLE

    Posted on July 26, 2012 | Categories : 2012,Press Release | Comments Off on Public Health Impact of Fragile X Mutation and New Clues on Root Cause of Autism
  • FOR IMMEDIATE RELEASE Contact: Robert Miller (925) 938-9300 robmiller@fragilex.org www.fragilex.org Walnut Creek, Calif. — The National Fragile X Foundation, the world’s leading authority on fragile X syndrome, launched its new website today. The site, fragilex.org, has been completely overhauled with a new look that’s broad, roomy, clean, simple and modern. But far from being just the same old site in a flashy new wrapper, the new site has a lot more going on under the hood — simpler navigation, more interactive features, new content, integration with social media networks, intuitive forms and the ability to chat while visiting any... » FULL ARTICLE

    Posted on January 17, 2012 | Categories : Press Release | Comments Off on Oh No They Didn’t! NFXF Launches New Website, Logo and First Brand Tagline