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The NFXF Blog

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The 1990’s and the NFXF Becoming a True National Organization

By |Mar 19, 2024|

Thankfully, we’ve come a long way since the day when FXS was jokingly referred to as “Fragile WHATSyndrome?!” In the 1990’s, many changes were taking place as a result of the increased scientific study of Fragile X and how the growing body of knowledge was impacting the work of the Foundation. 

The National Fragile X Foundation — The Early Years: 1984 – 1990’s

By |Feb 20, 2024|

The focus in the early years of the NFXF was to “get the word out!” During that time period, the inherited nature of Fragile X was not fully understood. However, early pioneers in the Fragile X world, such as Dr. Stephanie Sherman and Dr. Ted Brown, were steadily making progress in sorting out the genetics.