Kansas Fragile X Group | National Fragile X Foundation

Southwest Region

Olathe, Kansas

Leadership

Brooke Stack
Phone: 913-244-1784

Lisa Lawrence
Phone: 913-499-5579

About Our Group

The Kansas Fragile X Group was formed in January of 2011 by five women, four mothers and a grandmother, whose lives are affected by Fragile X. Our members are located throughout the state of Kansas and Western Missouri.

Our mission is to unite families challenged with Fragile X, to enrich lives through emotional and educational support, promote public and professional awareness, and to advance research toward improved treatments and a cure for Fragile X.

Recent Happenings

The 3rd Annual Walk for Faces of Fragile X

“The walk just keeps getting bigger and better every year!” This was a comment made by the mom in one of our families who drives more than three hours to attend the Walk for Faces of Fragile X in Kansas. She was particularly excited this year because her brother and his family joined them at the walk. That’s what it’s all about: families and their communities coming together to raise awareness, foster acceptance and see that we are not alone on this sometimes daunting journey.

on 23 October 2013 | No Comments

Upcoming Events

We are looking for volunteers to help organize events, if you are interested in joining our group and assisting with events, please contact us at NortheastKS@fragilex.org