EDITOR’S NOTE: The deadline for submitting presentations has passed. Please contact Jayne Dixon Weber at jayne@fragilex.org if you have any questions.

The Call for Presentations for the 17th NFXF International Fragile X Conference will open January 29, 2020.

The conference will be held Thursday, July 16 to Sunday, July 19, 2020, in Orlando, Florida.

We will accept presentations until midnight Monday, February 24, 2020.

Items to note:

  • Number of Breakout Sessions: There will be reduced number of available sessions for presentations due to the conference being a full day shorter. As a result, we anticipate there will be an increased number of posters and we are planning two poster presentation times.
  • Panel Sessions: Each time slot will have at least one panel; there will be a panel for each of the tracks listed below. You may be asked to be part of a panel, in lieu of or in addition to your talk. A moderator will be assigned to each panel and be responsible for coordinating the panel presentations and responses to participants. You may also create your own panel for one of the tracks and submit that as your presentation. Please limit the total number of participants to four people.
  • Interactive Sessions: Please focus your presentations on strategies and/or solutions and leave a minimum of 15 – 30 minutes (depending on session length) to answer questions. We are looking for presentations that are based on the latest information and best practices.
  • Sibling & Self-Advocate Sessions: Presentations by siblings and self-advocates will be considered.
  • PDFs of PowerPoint Presentations and Handouts are required.
  • Session Length: Breakout sessions vary from 60 – 75 minutes. Once you are assigned a day and time, be sure to check the length of your time slot.
  • Availability: All prospective presenters must be available to present during any breakout session time slot on Friday July 17th and Sat July 18th in order to give us maximum flexibility in finalizing the agenda.

Information You Will Need to Submit a Presentation

  1. Contact information for the Primary Presenter and the Co-Presenters – Name, credentials, email, etc.
  2. Biographies of all presenters
  3. Photos – Headshots only please
  4. Presentation Title
  5. Brief Presentation Description (please make it family friendly)
  6. Presentation Type: Family Friendly or Research

Family-Friendly presentations will need to provide 2-3 Learning Objectives and are limited to one of the below tracks:

  • Young Children with FXS (Suggested sessions: early intervention/finding out about local services, daily living strategies, toilet training, language, panel)
  • Education (Suggested sessions: IEPs – all components, learning strategies/behavior, middle/high school, panel)
  • Development & Behavior (Suggested sessions: sensory diet/hyperarousal, addressing anxiety, school ideas, panel)
  • Females (Suggested sessions: daily living strategies, executive function/anxiety, moms with a FM, panel)
  • Medications/Clinical Trials (Suggested sessions: when/where do I start? medications – options, clinical trials/studies, FXCRC-visiting a FX doctor, panel)
  • Adults with FXS –Most adult sessions will be panels. (Suggested sessions: high school/transition to adulthood, employment, daily living/cooking/nutrition/self-care, living settings, medical issues, addressing behaviors, panel – open questions)
  • Premutation Carrier Issues (Suggested sessions: FXTAS, FXPOI/Reproductive options-IVF/PGD, FXAND, panel)
  • Siblings (Suggested sessions: Life with a special needs sibling, daily tips and tricks)
  • Self-Advocates (Suggested sessions: Introduction/making friends/social media, employment, panel- females, panel-males, food/nutrition, yoga/exercise, transportation)
  • Other, please specify

NOTE: There is a limit of one co-presenter on Family-Friendly Presentations

Research Presentation: Identify Basic Science or Clinical Science.

  • FX Condition – Choose which Presentation Topic
    • All Fragile X
    • Fragile X Syndrome
    • FXTAS
    • FXPOI
    • Other premutation conditions
  • Research Track: If your presentation is basic or clinical science, it will automatically be assigned as a research session. Research sessions are a series of 15-minute presentations (which means each talk is roughly a 5-6 minute presentation, 5-6 minutes for questions, and 2-3 minutes to switch presenters). The last presenter is responsible for keeping time.
  • If you have a Research Abstract:
    • You will have fields to both upload your abstract and list your authors/institutions
    • There will be no co-presenters on Research Abstracts

Please check back for more information. We will have the link to submit your presentation here starting on January 29, 2020.

We look forward to your presentation.

Email Jayne Dixon Weber with any questions at jayne@fragilex.org.

LEARN MORE

The Family Reunion You Want to Go To

Emily Mack remembers her first time at an NFXF Int'l Fragile X Conference. “The best part was that it was the first time where I truly felt like everyone around me just understood, without explanation of who we were, what Fragile X was, and the highs and lows that it can bring to everyday.” Read her story.

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