Constituents (aka YOU) connecting with your members of Congress and their staff is THE KEY to our successful advocacy program. You make it possible.
The pillar of the program is Advocacy Day. Every spring, for over 20 years, we gather in Washington, D.C., in a concerted, joint effort to raise awareness of Fragile X in Congress and to ask for research funding and policies that provide the opportunity for a better life for those living with Fragile X.
We are planning an in-person NFXF Advocacy Day for 2022 for February 28-March 1, 2022. However, we will adjust given the pandemic response at the time. It is possible it could either be fully virtual like last year or a hybrid, where some meetings might be in-person and some might be virtual. What Congressional offices are not doing is having some people in-person and some virtual in the same meeting.
What does participation look like?
We take care of all of the pre-planning, including your training:
- Training: You receive training and will be paired up with a mentor if you want additional one-on-one guidance.
- Materials: You receive all of the materials you’ll need.
- Meetings: Your meetings are scheduled for you and everything is coordinated with other advocates from your area.
The bottom line? Don’t be nervous – we will help you each step of the way.