About Our Group
In 1989, Anita and Rick Inz, whose then 3-year-old son was diagnosed with Fragile X syndrome, and their friend formed the Fragile X Association of New York, Inc. They are proud to be one of the longest running parents’ groups for FXS, which is now referred to as the Fragile X Resource Group of Greater New York City.
This Community Support Network (CSN) chapter covering New York City, Long Island and Westchester provides information, referral and support to families and individuals living with FXS as well as the professional who work with them. Events of the group include mom’s night out, awareness walks, education sessions, family fun days and fundraising activities.