NFXF Wisconsin Chapter
Central Region

Oak Creek, Wisconsin
414-690-3359

Leadership

Rose Jahnke

Rose Jahnke

Julie Gey
Phone: 414-333-4120

Recent Happenings

Jay Souder Takes On New Role as NFXF Ambassador

With his board term now concluded, Jay has graciously stepped into our first-ever NFXF Ambassador position, helping us further build on the many relationships he established during his tenure.
Continue Reading

Advocacy Day Social Story

Our own Jayne Dixon Weber pulled together a social story to use to help you and your self-advocate prepare for the NFXF Advocacy Day on February 24, 2021.
Continue Reading

The Fragile X Premutation Registry is Now International

When we first launched the registry in November 2020, we weren’t yet able to accept non-U.S. registrants. There’s a lot of regulations and standards to work through on a project like this, but now we are truly living up to our name!
Continue Reading

What are Federal Budgets and Why They Matter

What is the President's budget, is it important for Fragile X advocacy, and how does Fragile X research get funded? These are all answered here.
Continue Reading

Upcoming Events

We are looking for volunteers to help organize events, if you are interested in joining our group and assisting with events, please contact us at milwaukee@fragilex.org