About the National Fragile X Foundation

The National Fragile X Foundation serves all those living with Fragile X with a focus on community, awareness, and research in the pursuit of treatments and a cure. Fragile X syndrome is the most common inherited intellectual and developmental disability. An estimated 1.5 million Americans have the gene premutation, and an estimated 100,000 Americans have Fragile X syndrome.

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Mission & Vision

Advocacy, Education, Research, Treatment

Our mission is to serve the entire Fragile X community to live their best lives by providing the knowledge, resources, and tools until, and even after, more effective treatments and a cure are achieved.

OUR MISSION AND VISION
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Financials & Impact

Audited Financial Statements

The National Fragile X Foundation was founded in 1984 as a public, non-profit 501(c)(3) charitable organization. To give our donors confidence that their donations are being used wisely to support Fragile X families, we provide audited financial statements, government certifications, independent certifications, and an annual impact report based on our audited financial statements. We are funded through individual contributions.

VIEW REPORTS
Linda Sorensen

Our Team

Our Staff is Always Here to Help You

Learn more about each of our staff members.

MEET OUR TEAM
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Our Board

Meet the NFXF Board of Directors

Read more about each of our esteemed board members.

OUR BOARD
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Our Advisors

Meet the NFXF Scientific & Clinical Advisory Committee

Read more about each of our esteemed advisors.

OUR ADVISORS
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Our Sponsors

Meet Our Supporting Corporate Sponsors

Corporate sponsors assist the National Fragile X Foundation by supporting our current programs and new initiatives across all strategic initiatives — advocacy, education, treatment, and research.

OUR SPONSORS