Developmental Pediatrician Dr. Randi Hagerman co-founded the NFXF in 1984 and has helped guide it ever since. In 2009, after more than 100 board meetings, Randi agreed that it was time to step aside and let others bring their expertise to the board. There is no aspect of the NFXF that Randi has not helped shape. Her strength as both a clinician and as a researcher has informed the NFXF mission and strategic plan. She and her husband Dr. Paul Hagerman generously support the NFXF mission. While Randi is no longer a board member, she is active on the NFXF Scientific & Clinical Advisory Committee and within the Fragile X Clinical & Research Consortium where she represents the UC Davis Medical Center’s MIND Institute as Medical Director of the Fragile X Clinic. Randi continues to be a sought after speaker and her work has expanded from Fragile X syndrome to all Fragile X-associated Disorders. Randi is continually on the go as an international spokesperson for Fragile X. Fortunately, she’s only an hour away from the NFXF headquarters by car and seconds away by phone when we need to call upon her for her guidance, advice and wisdom.Harris Hollin
Over the years, Harris N. Hollin has consistently demonstrated dedication, enthusiasm and commitment to supporting a cure for Fragile X. He has personally and profoundly been touched by his grandson, Matthew, who is fully affected by Fragile X syndrome. His need to help Matthew and the thousands of other children and adults with Fragile X syndrome caused him to found Conquer Fragile X Foundation (CFXF), which over the years funded scientific research all over the world, facilitated information and resource sharing among scientists and supported collaborative work among the world’s premier research labs in order to advance the scientific body of knowledge about Fragile X, its causes and potential treatments. In 2007 CFXF merged with the National Fragile X Foundation.
Harris enlisted in the US Army and served in Korea as an assistant platoon leader. He returned as a First Lieutenant, having earned a Bronze Star. He graduated from the University of Pennsylvania on the G.I. Bill and has since been followed at Penn by his three sons and three of his grandsons. After several positions, of increasing importance, he became President of Revlon’s International Pharmaceutical group, USV.
Harris created a successful business career in the health care area, building a modest pharmaceutical company, Lemmon, into what is now the multi-billion dollar United States division of TEVA Pharmaceuticals. Harris has numerous public service endeavors to his credit, including his service as an Associate Trustee of the University of Pennsylvania, and a Director Emeritus of the Wistar Institute, Harris also served as an Advisory Board Member for the Center on Aging and Health and the Division of Geriatric Medicine and Gerontology at the Johns Hopkins University Medical Center, and as Vice Chair of the Pennsylvania Chamber of Commerce. He is the Founding Chairman of Israel Elwyn, a leading provider of services to the intellectually disabled, in Israel. In 2006, Harris was honored by his appointment by President Bush to the President’s Committee for People with Intellectual Disabilities. Harris and his lovely wife of 58 years, Sande, have three sons and eight grandchildren. They live in Florida.Gene Koelbel
As a leader of the Sewall Child Development Center in Denver, Colorado, Gene Koelbel was instrumental in the early success of the National Fragile X Foundation through her support of and collaboration with Dr. Randi Hagerman in the early 1980’s. Along with her husband Walt, Gene provided crucial financial support for early Fragile X syndrome screening. She served on the NFXF Board of Directors throughout the 1980’s and 1990’s. Her, and her husband’s financial support of the NFXF in 1999 was crucial to its successful transition from a very small and poorly staffed organization to the much larger and effective organization of today. Gene also stepped forward to provide major financial support of the NFXF’s 25th
Anniversary Campaign in 2009.