Fragile X Syndrome & Associated Premutation Conditions Webinars
- Adulthood & Aging
- Adulthood & Estate Planning
- Adulthood & Housing
- Adulthood & Transitioning
- Autism
- Behavior — Includes sensory issues and hyperarousal
- Daily Living — Includes eating, sleep, socialization & relationships, toileting, caregivers, and support strategies
- Female Issues — Includes relationships and executive functioning
- School & Education
- Medications
- Physical & Medical Concerns — Includes mosaicism
- Puberty & Sexuality
Premutation
FXS Adulthood & Aging Webinars
FXS Adulthood & Estate Planning Webinars
FXS Adulthood & Housing Webinars
FXS Adulthood & Transitioning Webinars
NFXF Webinar: Being Prepared for Adulthood
Dr. Yankowitz discusses the adult transitions you want to start planning well before your child ages out of services.
FXS Autism Webinars
FXS Behavior Webinars
See all FXS behavior resources →
Includes sensory and hyperarousal.
Emotional Regulation in Fragile X Syndrome — Webinar
This presentation focuses on signs of emotion dysregulation in Fragile X syndrome and ways to respond including practical strategies.
Encouraging Early Communication: Strategies for Caregivers — Webinar
This presentation focuses on tools that caregivers can use to encourage communication development for individuals at early stages of development.
Expert Panel Discussion on Young Children With FXS — Webinar
Our expert panel discusses the issues around caring for young children with Fragile X syndrome, including speech development, integrating with their typical siblings, occupational therapy, behavioral issues, and much much more.
Supporting Your Child with Fragile X Syndrome During Special Times — Webinar
Barbara Haas-Givler shares her tips and methods for caregivers supporting children with Fragile X syndrome during challenging times.
FXS Daily Living Webinars
See all FXS daily living resources →
Includes eating, sleep, socialization & relationships, toileting, caregivers, and support strategies.
Encouraging Early Communication: Strategies for Caregivers — Webinar
This presentation focuses on tools that caregivers can use to encourage communication development for individuals at early stages of development.
Dads Helping Dads — Webinar
Calling all fathers, papas, daddies, pop, and dads—Will Bridges discusses raising a child or children with Fragile X syndrome.
Using Mindfulness and Acceptance Techniques to Reduce Stress — Webinar Replay
Dr. Anne Wheeler provides an overview of stress vulnerability in women with (and without) a premutation, and how mindfulness-based techniques can be helpful for increasing mindfulness, reducing stress, and improving overall well-being.
Expert Panel Discussion on Young Children With FXS — Webinar
Our expert panel discusses the issues around caring for young children with Fragile X syndrome, including speech development, integrating with their typical siblings, occupational therapy, behavioral issues, and much much more.
FXS Female Issues Webinars
See all FXS female issues resources →
Includes relationships and executive functioning issues.
Setting the Stage for Success: Effective Strategies to Promote and Support Social Skills — Webinar
This session discusses specific strategies to help promote and support essential social skills for those with Fragile X.
Health Concerns for Women Who Carry an FMR1 Premutation — Webinar
Learn about the health conditions for women who carry an FMR1 premutation for Fragile X syndrome.
Females and Fragile X Syndrome — Webinar Replay
Dr. Braden helps us understand the difference between males and females with Fragile X syndrome as well as strategies for common challenges for females that include executive functioning and relationships.
Female Power to Fight a Crisis — Webinar Replay
Females living with Fragile X syndrome were asked to give advice to other females living with FXS on how to cope with this — or any future — crisis. Listen as Marcia talks through their advice and her own advice, built on decades of working with patients with Fragile X syndrome.
FXS School & Education Webinars
Keynote — Industry Updates — Webinar
It's time for our 2022 FXS industry insights. Explore research, insights, clinical trials, discussions and more.
Panel Discussion – Fragile X Syndrome Research Landscape Q&A — Webinar
Learn in this panel discussion about Fragile X research and how you can get involved.
No Tears for Fears in the School Age Years: IEPs — Webinar
This interactive family-friendly presentation will focus on considerations for school-age children with Fragile X syndrome.
Starting and Monitoring Medications in Fragile X Syndrome — Webinar
Learn how to navigate medication strategies and approaches for children with FXS.
FXS Medications Webinars
2022 Medications Update — Webinar
Jayne Dixon Weber and Dr. Craig Erickson discuss new medications and review existing medications used for various issues related to Fragile X syndrome.
Medications for Fragile X: Anxiety, Irritable Behaviors & Aggression — Webinar
Drs. Berry-Kravis and Erickson discuss currently available supportive medications for treating anxiety and irritable, agitated, and aggressive behaviors in Fragile X syndrome.
Panel Discussion on Medications — Webinar
Our expert panel of Drs. Erickson, Berry-Kravis, and Hagerman discuss medications including what age anxiety medications should be considered, medications for aggressive behavior, and side effects.
FXS Physical & Medical Concerns Webinars
See all physical & medical conditions resources →
Includes mosaicism.
FXS Puberty & Sexuality Webinars
Fragile X Premutation Webinars
Health Concerns for Women Who Carry an FMR1 Premutation — Webinar
Emily Allen discusses some of the health concerns of women who are premutation carriers and shares research findings from her group at Emory University.
Premutation Carrier Concerns Panel Discussion
Panelists Randi Hagerman, Heather Hipp, Emily Allen, and Marsha Mailick helps answer what it means for your health, your family, and your future at the 17th International Fragile X Conference.
FXPOI Webinars
FXTAS Webinars
Advancing Our Understanding and Future Treatment of FXTAS Panel Discussion
Experts Deborah Hall, Maureen Leehey, Peter Todd, and Nancy Hertzig discuss the latest in FXTAS research and treatment.
Fragile X-Associated Tremor/Ataxia Syndrome 101 — Webinar
Neurologists Drs. Deborah Hall and Maureen Leehey provide an overview of FXTAS, a summary of the clinical features in the disease, and treatment options, including surgery, for FXTAS patients.