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X-WR-CALDESC:Events for NFXF
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DTSTART;TZID=America/New_York:20260512T190000
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DTSTAMP:20260618T182407
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UID:91494-1778612400-1778616000@fragilex.org
SUMMARY:Females with FXS Webinar Series: Health\, Wellness & Fertility
DESCRIPTION:The NFXF & LivJoy Foundation Present Females with Fragile X Syndrome Webinar Series: Health\, Wellness & Fertility \nWe have assembled an incredible multidisciplinary panel to address specific questions from families and self-advocates about health\, wellness\, and fertility: Vicki Wilkins\, Deby Barbouth\, Heather Hipp\, and Makenzie Woltz. \nWe anticipate topics to include talking about health and wellness broadly\, touching on physical and mental health\, and talking through puberty & sexuality\, from menstruation through family planning options. \nWe are excited to have a special focus on females\, as girls and women sometimes feel neglected and their needs are different. The goal is to address any differences or specifics to females with FXS how to live a healthy life (physically\, mentally)\, navigate puberty & sexuality\, and plan for their future. \nRegister Now
URL:https://fragilex.org/event/females-fxs-webinar-puberty-sexuality/
LOCATION:IL
CATEGORIES:Educational|Webinar
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/03/2026-Females-with-FXS-Health-Wellness-and-Fertility.png
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DTSTART;TZID=America/New_York:20260519T120000
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DTSTAMP:20260618T182407
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UID:92633-1779192000-1779195600@fragilex.org
SUMMARY:Understanding the Shionogi EXPERIENCE Trial Findings
DESCRIPTION:Join us for a community update on the EXPERIENCE clinical trial program in Fragile X syndrome. Hosted by FRAXA and the National Fragile X Foundation\, this webinar will feature Shionogi discussing the recently shared trial results\, what is known so far\, and what comes next. \nThe webinar will be recorded and made available shortly after the event. \nAttendees are encouraged to submit questions when registering; the earlier a question is submitted\, the more likely it is to be addressed during the conversation. \nRegistration required. REGISTER HERE
URL:https://fragilex.org/event/understanding-the-shionogi-experience-trial-webinar/
LOCATION:IL
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/05/Shionogi-webinar.png
ORGANIZER;CN="National Fragile X Foundation":MAILTO:contact@fragilex.org
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