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April 2019

An Afternoon with Randi Hagerman and Len Abbeduto

Dr. Randi Hagerman
April 14 @ 3:00 PM – 5:30 PM UTC-5
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Please join us for a conversation with Fragile X experts from the UC Davis MIND Institute. Len Abbeduto, Ph.D., director, and Randi Hagerman, M.D., medical director, will share updates related to FMR1-related disorders, including Fragile X syndrome and FXTAS and discuss research related to premutation carriers.

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May 2019

$15

IEP Strategies for Fragile X Students (Preschool-Adult Program)

May 4 @ 12:30 PM – 5:00 PM UTC-5
Carson Community Center (Room 122) 801 E. Carson Street
Carson, CA 90745 United States
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IEP Strategies for Fragile X Students: The Role of Parents and Caregivers in Requesting Services Join us for an informative lecture with Dr. Ioana Pal, PsyD fromStramski Children’s Developmental Center, Fragile X Clinicfollowed by a [...]

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$20 – $100

Support Fragile X at Comedy City

May 9 @ 6:15 PM – 9:00 PM CDT
Comedy City 3600 Broadway
Kansas City, MO 64111 United States
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Come watch the hilarious Comedy City Improv Show to support the National Fragile X Foundation (NFXF) Kansas Chapter. The comedy team will be ready to earn your laughs and win your loyalty as they perform [...]

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$35 – $45

NW Region Fragile X Conference 2019

Karen Riley
May 18 @ 9:00 AM – 4:00 PM UTC-5
WA United States
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KEYNOTE SPEAKER: DR. KAREN RILEY Dr. Riley lectures extensively throughout the U.S. as well as internationally on behavioral and educational interventions for children with Neurodevelopmental Disorders, primarily those with Fragile X syndrome.  

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free

Support Group Meeting

Brooklyn New York cityscape
May 18 @ 3:00 PM – 5:00 PM UTC-5
Home of Anita Inz, Downtown Brooklyn email for address
Brooklyn, NY 11201 United States
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Anita Inz has generously offered to host our next support group meeting!: FX specialists Dr. Vicki Sudhalter, PhD, and Laurie Yankowitz, Ed.D. will be in attendance to answer questions and offer support to our group. [...]

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Pizza Ranch Fundraiser

May 20 @ 5:00 PM – 9:00 PM UTC-5
IA United States
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Come out and support families affected by Fragile X Syndrome. Fragile X Syndrome is the most common cause of inherited intellectual disability and the most common known genetic cause of autism or autism spectrum disorders. [...]

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June 2019

$30

Bike To X Out Fragile X

June 1 @ 7:30 AM – 4:00 PM CDT
Bicycle Ride 120 NW Ash
Ankeny, IA 50023 United States
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This is a 56 mile bicycle ride with all proceeds benefiting The National Fragile X Foundation, Heartland Chapter - Iowa and South Dakota Registration and packet pickup is 7: 30am-8:30am at the High Trestle Trail [...]

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Moms, Siblings, and Self-Advocates Night Out

Moms Night Out in Massachusetts/Connecticut
June 3 @ 6:30 PM – 9:00 PM UTC-5
California Pizza 3 West Farms Mall
Farmington, CT 06032 United States
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Come and enjoy a meal (self-pay) with other moms and self-advocates (must be over 16 years)! Support and idea sharing is the purpose!

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Free

Northern Virginia Fragile X Parent’s Night Out

Northern Virginia Parent's Night Out
June 13 @ 6:30 PM – 8:00 PM EDT
Artie’s 3260 Old Lee Highway
Fairfax, VA 22030 United States
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Join us for good food and good company at Artie's Restaurant in Fairfax.

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Free

FRAXSOCAL’S Summer Family Fun Day

June 23 @ 12:00 PM – 3:00 PM UTC+9
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It’s time for another FREE FRAXSOCAL Family Fun Day! Please join us at Scooter’s Jungle in the City of El Segundo on Sunday, June 23, 2019 12:30pm to 3:00pm For those of you who have [...]

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Dad’s Night Out

June 24 @ 6:30 PM – 8:30 PM EDT
Buffalo Wild Wings 315 Union Street
Waterbury, CT 06706 United States
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Come meet other dads, have dinner, and a good time! Please RSVP - connecticut@fragilex.org For more information, please contact: Tammy Selinger 860-202-5956 Andy Selinger 860-205-3929

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July 2019

Free – $25

X Strides 2019 – Northern California

Two X Stride Participants in Oakland, CA
July 13 @ 9:00 AM – 1:00 PM UTC-5
Lake Merritt at Lakeside Park 568 Bellevue Ave
Oakland, CA 94610 United States
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The Northern California Chapter of NFXF is holding its 3rd Annual X Strides Walk on July 13, 2019, at Lake Merritt at Lakeside Park in Oakland, California. Register and/or learn about sponsorship opportunities.

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Free

Fragile X Southwest Community Event

Southwest Fragile X Community Event and map of continental US
July 13 @ 10:00 AM – 4:00 PM MST
Phoenix Children’s Hospital, Rosenberg Children’s Medical Plaza Building 1920 E Cambridge Ave
Phoenix, AZ 85006 United States
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Please join us for the Fragile X Southwest Community Event to be held on July 13, 2019. The event is designed to provide families with an opportunity to: discuss topics and concerns relevant to the diagnoses and treatment of Fragile X Syndrome (FXS); learn more about research being conducted in Fragile X and other conditions including Autism, Mitochondrial Dysfunction and language delays.

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X Strides Chicago 2019

X Strides Chicago 2019
July 14 @ 8:00 AM – 11:00 AM UTC-5
Montrose Harbor 601 W. Montrose Avenue
Chicago, IL 60613 United States
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X Strides is about bringing family, friends, and communities together to support the mission of the National Fragile X Foundation. X Strides is a family friendly run/walk. Join us for a chip-timed 5 K and [...]

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Free

2019 Fragile X Family Research Conference

July 20 @ 9:00 AM – 4:00 PM EDT
Sabin Auditorium at Cincinnati Childrens Hospital Medical Center 3333 Burnet Avenue
Cincinnati, OH 45220 United States
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UPDATE - LIVESTREAM The plan is to offer a livestream of the event. If all goes well, you can view the event online with the below links. 9:00AM-12:00 PM streaming link https://cchmcstream.cchmc.org/MediasiteEX/Play/56e60d779d7e4723b8975daa0c4067151d 1:00 PM-4:00 PM [...]

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