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February 2021
Join the Sibling and Self Advocacy Network as we prepare for the NFXF Virtual Advocacy Day! We may not be together n D.C. this year but we can still be together via Zoom! We ...
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Advocacy Day is on for 2021, but this time it's virtual. However, we'll still all meet for the day and registration is required. Join us on Feb. 24, 2021, for virtually the best advocacy day ever!
Find out moreMarch 2021
NFXF has secured an Externally-led Patient-Focused Drug Development (PFDD) meeting for fragile X syndrome. Your feedback will help inform drug development in FXS.
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Virtual Chat for FX Dads. Although the CT chapter is sponsoring, all are welcome!
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Virtual Mom's Night Out hosted by the Connecticut and Western Massachusetts Chapters. All moms are welcome to join!
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Our family-friendly “Virtual Game Day” will give everyone the opportunity to dance, win prizes, catch up with friends and remember our fun events this past year. Together, we are stronger! Zoom meeting code available ...
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ConneXions will be an ongoing series of virtual meetings to connect all families living with Fragile X. We will have events that will help connect those families who may be newly diagnosed to adults ...
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Sunday, March 28, 2021 @ 6:00pm Bring your own pizza & beverage! Enjoy a fun family night of bingo and socialization virtually.
Find out moreApril 2021
Dr. Craig Erickson will join us for a special webinar to cover two issues: answer your questions about the safety of the COVID-19 vaccine for Fragile X premutation carriers and those with Fragile X ...
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Please join the Northern Virginia Chapter leader, Andrea Creighton, for a virtual gathering. Bring your own beverage and let's catch up. Please register to join us. We hope to see you there! ...
Find out moreVirtual Chat for FX Dads. Although the CT chapter is sponsoring, all are welcome! Register in advance to join.
Find out morePlease join Nikki Kiakona and NFXF Team member, Missy Zolecki for a virtual gathering on April 10, 2021 from 10 AM - 11 AM HI. Nikki is from Volcano, HI and is the parent ...
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