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July 2019
X Strides is about bringing family, friends, and communities together to support the mission of the National Fragile X Foundation. X Strides is a family friendly run/walk. Join us for a chip-timed 5 K and [...]
Find out moreUPDATE - LIVESTREAM The plan is to offer a livestream of the event. If all goes well, you can view the event online with the below links. 9:00AM-12:00 PM streaming link https://cchmcstream.cchmc.org/MediasiteEX/Play/56e60d779d7e4723b8975daa0c4067151d 1:00 PM-4:00 PM [...]
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Come celebrate National Fragile X Awareness Day on July 21! Wear your green & come bowling at Devon Lanes. Pizza, snacks, and drinks will be available. Please RSVP here to get a headcount. I look [...]
Find out moreGovernor McMaster has declared July 22, 2019 as Fragile X Awareness Day in South Carolina. Please join us at the South Carolina State House for a rally to raise awareness. We had an excellent crowd [...]
Find out moreDinner* Music* Raffles* Silent Auction* Door Prizes. Tickets are $20 per person and includes dinner!
Find out moreAnnual Golf Fundraiser for NFXF - Heartland Chapter - Iowa & South Dakota Four Person Best Ball Charity Golf Tournament - $120 per team, includes lunch, golf, chance to win prizes and promise of a [...]
Find out moreThis is a rescheduled event & will now be held on Sunday, July 28th! Please check facebook.com/njfragilex for updates! We are meeting at Kittatinny Valley State Park (in Andover, NJ) at 9:15AM in the front [...]
Find out moreAugust 2019
Family Pool Party for Fragile X Families Sunday, August 4, 2019 11:30 AM - 3:30 PM JCC Swim & Tennis Club, 4 Duncaster Road, Bloomfield, CT FREE - Lunch will be provided! Please be sure [...]
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If you’re a Fragile X parent, grandparent, or caregiver and you want to have some good food and conversation with some very good people, then come out! 6PM - Happy Hour 7PM - Dinner This [...]
Find out moreIf you’re a Fragile X parent, grandparent or caregiver and you want to have some good food and conversation with some very good people, then come out to our Moms’ Night Out! Our past nights [...]
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A one day conference featuring our guest speaker, Dr. Marcia Braden, Ph.D., P.C. Marcia L. Braden is a licensed psychologist, with a clinical practice specializing in children and adolescents. She is a former teacher with [...]
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Bring your friends to Pizza Ranch, 2020 Radford Rd in Dubuque, IA on Thursday, August 22 from 4pm-8pm. If you can't make it, call ahead and carry-out! 10% of all sales that evening will be [...]
Find out moreSeptember 2019
Stride to support families, raise awareness, and facilitate research towards treatments and a cure. X Strides is about a community coming together to stand up for families living with Fragile X. We Stride for the: [...]
Find out moreSuccessful inclusion of people with disabilities in our communities can pose significant challenges. While inclusion increases opportunities for normalization, it also increases vulnerability to community risks and hazards. This educational seminar will help parents, caregivers, [...]
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The Arizona Diamondbacks have donated a suite for us to use for the September 15th game against the Cincinnati Reds. We have a very limited amount of seats, first come first served. Please email arizona@fragilex.org [...]
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