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February 2019
We will meet from 11:00 to 2:00pm (Doors open at 10:30). Dr. Erickson will kick off the day at 11:05 with a Fragile X Update, followed by provided food (chili and subs) and drinks, plenty [...]
Find out moreMarch 2019
Come to our Second Night Out for Parents and Caregivers sponsored by Suburban Research Associates! Mix with other parents and caregivers. Get updates from presenters Dr. Shivkumar Hatti, M.B.A. and Barbara Haas-Givler, BCBA. Dr. Hatti [...]
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FRAXSOCAL’s 7th annual 5K for Fragile X Join us on Saturday, March 9, 2019 for the 7th Annual 5K Walk/Race for Fragile X and celebrate California Fragile X Awareness Day! Why race for Fragile X [...]
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We're addressing an important issue that affects many people. Our mission is to spread awareness and raise money for solutions we have identified. We created this event for everyone to contribute at various impact levels. [...]
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Come share a meal, ideas and support with other Fragile X Moms in CT and Mass. Bring your siblings and/or Self Advocates over 16 years old to share a meal with others lead by Kelley Devine co-leader of the Siblings and Self-Advocates group. They will be seated in another area of the restaurant.
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If you're a Fragile X parent, grandparent or caregiver and you want to have some good food and conversation with some very good people, then come out to our Moms' Night Out! Our past nights [...]
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We have reserved the gymnasium facility featuring: • Trampolines, tumble track, foam pit and balance beams • Ninja Equipment (ages 7+) including: the warped wall, rock wall, hanging obstacles • Obstacle Course Challenge Kids of [...]
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Thank you Laurie Williams and family for organizing a family get together!! Please join Laurie and family at Dave & Busters, Vernon Hills, IL. We will have a space reserved for us. Please RSVP to [...]
Find out moreApril 2019
• A scenic 5K run or walk thru Zoo Miami, the largest and oldest zoological garden in Florida, and the only tropical zoo in the continental United States! • Activities along the path, engages kids [...]
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Please join us for a conversation with Fragile X experts from the UC Davis MIND Institute. Len Abbeduto, Ph.D., director, and Randi Hagerman, M.D., medical director, will share updates related to FMR1-related disorders, including Fragile X syndrome and FXTAS and discuss research related to premutation carriers.
Find out moreMay 2019
IEP Strategies for Fragile X Students: The Role of Parents and Caregivers in Requesting Services Join us for an informative lecture with Dr. Ioana Pal, PsyD fromStramski Children’s Developmental Center, Fragile X Clinicfollowed by a [...]
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Come watch the hilarious Comedy City Improv Show to support the National Fragile X Foundation (NFXF) Kansas Chapter. The comedy team will be ready to earn your laughs and win your loyalty as they perform [...]
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KEYNOTE SPEAKER: DR. KAREN RILEY Dr. Riley lectures extensively throughout the U.S. as well as internationally on behavioral and educational interventions for children with Neurodevelopmental Disorders, primarily those with Fragile X syndrome.
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Anita Inz has generously offered to host our next support group meeting!: FX specialists Dr. Vicki Sudhalter, PhD, and Laurie Yankowitz, Ed.D. will be in attendance to answer questions and offer support to our group. [...]
Find out moreCome out and support families affected by Fragile X Syndrome. Fragile X Syndrome is the most common cause of inherited intellectual disability and the most common known genetic cause of autism or autism spectrum disorders. [...]
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