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X-ORIGINAL-URL:https://fragilex.org
X-WR-CALDESC:Events for NFXF
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260414T190000
DTEND;TZID=America/New_York:20260414T200000
DTSTAMP:20260618T212235
CREATED:20260310T225743Z
LAST-MODIFIED:20260602T143301Z
UID:91491-1776193200-1776196800@fragilex.org
SUMMARY:Females with FXS Webinar Series: Tools & Tactics for Anxiety
DESCRIPTION:The NFXF & LivJoy Foundation Present Females with Fragile X Syndrome Webinar Series: Tools & Tactics for Anxiety \nWe have assembled an incredible multidisciplinary panel to address specific questions from families and self-advocates about anxiety: Rebecca Shaffer\, Debra Reisinger\, Nicole Tartaglia\, and Jane Roberts. \nWe anticipate topics to include talking about what anxiety is\, go-to tactics to help acknowledge and address anxiety symptoms\, and helpful daily practices. \nWe are excited to have a special focus on females\, as girls and women sometimes feel neglected and their needs are different. The goal is to address any differences or specifics to females with FXS how to live a healthy life (physically\, mentally)\, navigate puberty & sexuality\, and plan for their future. \nRegister Now \n 
URL:https://fragilex.org/event/females-with-fragile-x-syndrome-tools-tactics-for-anxiety/
LOCATION:IL
CATEGORIES:Educational|Webinar
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/03/2026-Females-with-FXS-Tools-Tactics-for-Anxiety-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260418T140000
DTEND;TZID=America/New_York:20260418T150000
DTSTAMP:20260618T212235
CREATED:20260316T210352Z
LAST-MODIFIED:20260602T143301Z
UID:91589-1776520800-1776524400@fragilex.org
SUMMARY:SSAN April Zoom - Chit Chat with Dillon and Kelley
DESCRIPTION:Dillon and Kelley will introduce our “mystery” guest(s) from the Fragile X Community. We will reveal in April who the guest(s) are via Facebook. They will ask some fun questions. Our guest(s) will share some information then everyone will also have the chance to share. Our guest(s) will then close out our hour (before closing remarks) with a game of Would you Rather? \nPlease join our Facebook Page to get Zoom information or email sibselfrl@fragilex.org for details.
URL:https://fragilex.org/event/ssan-april-zoom-chit-chat-with-dillon-and-kelley/
LOCATION:Zoom
CATEGORIES:Online Only
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/03/Screenshot-2026-03-16-at-2.00.32-PM.png
ORGANIZER;CN="Diane Southard":MAILTO:southard5@sbcglobal.net
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260512T190000
DTEND;TZID=America/New_York:20260512T200000
DTSTAMP:20260618T212235
CREATED:20260310T230610Z
LAST-MODIFIED:20260602T143301Z
UID:91494-1778612400-1778616000@fragilex.org
SUMMARY:Females with FXS Webinar Series: Health\, Wellness & Fertility
DESCRIPTION:The NFXF & LivJoy Foundation Present Females with Fragile X Syndrome Webinar Series: Health\, Wellness & Fertility \nWe have assembled an incredible multidisciplinary panel to address specific questions from families and self-advocates about health\, wellness\, and fertility: Vicki Wilkins\, Deby Barbouth\, Heather Hipp\, and Makenzie Woltz. \nWe anticipate topics to include talking about health and wellness broadly\, touching on physical and mental health\, and talking through puberty & sexuality\, from menstruation through family planning options. \nWe are excited to have a special focus on females\, as girls and women sometimes feel neglected and their needs are different. The goal is to address any differences or specifics to females with FXS how to live a healthy life (physically\, mentally)\, navigate puberty & sexuality\, and plan for their future. \nRegister Now
URL:https://fragilex.org/event/females-fxs-webinar-puberty-sexuality/
LOCATION:IL
CATEGORIES:Educational|Webinar
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/03/2026-Females-with-FXS-Health-Wellness-and-Fertility.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260519T120000
DTEND;TZID=America/New_York:20260519T130000
DTSTAMP:20260618T212235
CREATED:20260514T174600Z
LAST-MODIFIED:20260602T143301Z
UID:92633-1779192000-1779195600@fragilex.org
SUMMARY:Understanding the Shionogi EXPERIENCE Trial Findings
DESCRIPTION:Join us for a community update on the EXPERIENCE clinical trial program in Fragile X syndrome. Hosted by FRAXA and the National Fragile X Foundation\, this webinar will feature Shionogi discussing the recently shared trial results\, what is known so far\, and what comes next. \nThe webinar will be recorded and made available shortly after the event. \nAttendees are encouraged to submit questions when registering; the earlier a question is submitted\, the more likely it is to be addressed during the conversation. \nRegistration required. REGISTER HERE
URL:https://fragilex.org/event/understanding-the-shionogi-experience-trial-webinar/
LOCATION:IL
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/05/Shionogi-webinar.png
ORGANIZER;CN="National Fragile X Foundation":MAILTO:contact@fragilex.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260602
DTEND;VALUE=DATE:20260801
DTSTAMP:20260618T212235
CREATED:20260602T161243Z
LAST-MODIFIED:20260616T191122Z
UID:92756-1780358400-1785542399@fragilex.org
SUMMARY:NFXF X Strides 2026
DESCRIPTION:Join us for this year’s X Strides to raise awareness and funds to support the Fragile X community! We focus our awareness efforts during July\, Fragile X Awareness Month\, but feel free to start early or hold your walk or gathering anytime! You can register as an individual\, start a team\, or join an existing team! \nWHO: Anyone! \nWHAT: Walk\, run\, bike\, hike\, gather at a park\, play your favorite games\, schedule a get-together on Zoom. You decide what you want to do to raise awareness of Fragile X. Take photos in your Fragile X gear and share on social media. \nWHEN: Anytime during the month of July\, Fragile X Awareness Month. \nWHERE: Anywhere you choose! \nCOMING TO CONFERENCE?  We’re having an X Strides walk for ALL conference attendees on Friday morning July 17\, walking from the hotel to 4th Street and back! \nWHY: To support the National Fragile X Foundation to provide knowledge\, resources and tools for all families impacted by Fragile X. \nPRIZES: this year’s prizes include NEW custom “X” green sneakers for top fundraisers!
URL:https://fragilex.org/event/nfxf-x-strides-2026/
LOCATION:IL
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/04/FEX-2026_XStrides-HorizLogo-e1781636706171.png
ORGANIZER;CN="National Fragile X Foundation":MAILTO:contact@fragilex.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260603T193000
DTEND;TZID=America/New_York:20260603T220000
DTSTAMP:20260618T212235
CREATED:20251024T011108Z
LAST-MODIFIED:20260602T143301Z
UID:89597-1780515000-1780524000@fragilex.org
SUMMARY:FX Dadʼs Chat
DESCRIPTION:There are nine dates between October 2025 and June 2026 in this monthly virtual get-together for dads\, hosted by the NFXF Connecticut Chapter. You do not need to be a chapter member — all are welcome! They each run from 7:30 through 10:00 pm (ET)\, but youʼre welcome to join when you can and stay as long as you can. \nIf you’d like to join us or learn more\, please reach out to Andy Selinger at 860-205-3929 or connecticut@fragilex.org for the link to join the next virtual get-together. \nTime: 7:30–10 pm ET \nDates: All are Wednesdays \n\nOctober 8\, 2025\nNovember 5\, 2025\nDecember 3\, 2025\nJanuary 7\, 2026\nFebruary 4\, 2026\nMarch 4\, 2026\nApril 8\, 2026\nMay 6\, 2026\nJune 3\, 2026
URL:https://fragilex.org/event/fx-dad%ca%bcs-chat/
LOCATION:IL
CATEGORIES:Social Events
ATTACH;FMTTYPE=image/jpeg:https://fragilex.org/wp-content/uploads/2025/09/dads-chat-featured.jpg
ORGANIZER;CN="NFXF Connecticut Chapter":MAILTO:connecticut@fragilex.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260711T090000
DTEND;TZID=America/Chicago:20260711T090000
DTSTAMP:20260618T212235
CREATED:20260608T170352Z
LAST-MODIFIED:20260608T232505Z
UID:92780-1783760400-1783760400@fragilex.org
SUMMARY:Greater Chicago X Strides Walk
DESCRIPTION:Join us for this year’s X Strides to raise awareness and funds to support the Fragile X community! \nWhen: Saturday\, July 11 at 9 am.\nWhat: Walk or ride\nWhere: 2500 Chestnut Ave Glenview\, IL 60026\nWHY: to support the National Fragile X Foundation to provide knowledge\, resources and tools for all families impacted by Fragile X. \nWe will be walking at Gallery Park. It is a nice ring around a lake ending at the Little Bear Park playground. The playground is fenced in and there are restrooms with running water nearby. It also has a splash pad. Fun for families. \nParking is at Attea Middle School which is next to Little Bear Park playground at this address 2500 Chestnut Ave Glenview\, IL 60026. \nMake sure you join our team at https://give.fragilex.org/team/831749 and help us fundraise for the Fragile X Foundation. We cannot wait to see you. Questions reach out to Dawn at greaterchicago@fragilex.org
URL:https://fragilex.org/event/greater-chicago-x-strides-walk/
LOCATION:2500 Chestnut Avenue\, Glenview\, IL 60026\, 2500 Chestnut Ave\, Glenview\, IL\, 60026\, United States
CATEGORIES:Fundraiser|Social Events
ORGANIZER;CN="Dawn Brown":MAILTO:greaterchicago@fragilex.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260716
DTEND;VALUE=DATE:20260720
DTSTAMP:20260618T212235
CREATED:20250919T232646Z
LAST-MODIFIED:20260602T143301Z
UID:89248-1784160000-1784505599@fragilex.org
SUMMARY:The 2026 20th NFXF International Fragile X Conference
DESCRIPTION:Save the date! Additional information will be added as it becomes available. Also see the NFXF International Fragile X Conference main page.
URL:https://fragilex.org/event/2026-20th-nfxf-international-fragile-x-conference/
LOCATION:Louisville Marriot Downtown\, 280 W. Jefferson St.\, Louisville\, KY\, 40202\, United States
CATEGORIES:Educational,Social Events
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2025/03/events-conference-featured.png
ORGANIZER;CN="National Fragile X Foundation":MAILTO:contact@fragilex.org
END:VEVENT
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