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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260127T120000
DTEND;TZID=America/New_York:20260127T130000
DTSTAMP:20260403T083453
CREATED:20260114T213105Z
LAST-MODIFIED:20260120T231153Z
UID:91058-1769515200-1769518800@fragilex.org
SUMMARY:2026 NFXF Webinar Series: NIH Fragile X Centers of Excellence Updates
DESCRIPTION:Join us for a webinar with annual updates from the NIH-awarded Fragile X Centers of Excellence. \nRegistration is required.
URL:https://fragilex.org/event/2026-nfxf-webinar-series-nih-fragile-x-centers-of-excellence-updates/
LOCATION:Zoom
CATEGORIES:Educational|Webinar
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/01/NIH-webinar-2026.png
ORGANIZER;CN="National Fragile X Foundation":MAILTO:contact@fragilex.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260203T140000
DTEND;TZID=America/New_York:20260203T144500
DTSTAMP:20260403T083453
CREATED:20260114T183637Z
LAST-MODIFIED:20260114T221337Z
UID:91050-1770127200-1770129900@fragilex.org
SUMMARY:2026 NFXF Webinar Series: FORWARD-MARCH Updates
DESCRIPTION:Join us for FORWARD-MARCH study updates from Dr. Elizabeth Berry-Kravis (Principal Investigator) and Amie Milunovich (National Study Coordinator). Learn more about FORWARD-MARCH. \nWe hope to see you there! Registration is required.
URL:https://fragilex.org/event/2026-nfxf-webinar-series-forward-march-updates/
LOCATION:Zoom
CATEGORIES:Educational|Webinar
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/01/FORWARD-MARCH-2026-webinar.png
ORGANIZER;CN="National Fragile X Foundation":MAILTO:contact@fragilex.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260211T193000
DTEND;TZID=America/New_York:20260211T203000
DTSTAMP:20260403T083453
CREATED:20251203T145830Z
LAST-MODIFIED:20251203T145830Z
UID:90630-1770838200-1770841800@fragilex.org
SUMMARY:NFXF Advocacy Day 2026 Q&A
DESCRIPTION:We are hosting a Zoom call designed for new advocates attending the February 23-24 Advocacy Day. This will be a time to ask any questions you may have. All advocates are welcome! \n\n Date: February 11\, 2026\nTime: 7:30 PM ET\nPlease register
URL:https://fragilex.org/event/nfxf-advocacy-day-2026-qa/
LOCATION:Zoom
ORGANIZER;CN="National Fragile X Foundation":MAILTO:contact@fragilex.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260223
DTEND;VALUE=DATE:20260225
DTSTAMP:20260403T083453
CREATED:20250919T233208Z
LAST-MODIFIED:20251024T005843Z
UID:89260-1771804800-1771977599@fragilex.org
SUMMARY:Advocacy Day 2026
DESCRIPTION:Save the date! Additional information will be added as it becomes available. Learn more about Advocacy Day.
URL:https://fragilex.org/event/advocacy-day-2026/
LOCATION:Washington\, DC\, DC\, 20003\, United States
CATEGORIES:Advocacy,Social Events
ATTACH;FMTTYPE=image/jpeg:https://fragilex.org/wp-content/uploads/2025/09/advocacy-day-featured.jpg
ORGANIZER;CN="National Fragile X Foundation":MAILTO:contact@fragilex.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260314T140000
DTEND;TZID=America/New_York:20260314T170000
DTSTAMP:20260403T083453
CREATED:20260309T204258Z
LAST-MODIFIED:20260309T204258Z
UID:91478-1773496800-1773507600@fragilex.org
SUMMARY:Thumbs Up Thumbs Down March Themed Trivia Fun
DESCRIPTION:Siblings & Self Advocates Please Join Us for\nTHUMBS UP THUMBS DOWN MARCH THEMED TRIVIA FUN! \nSaturday\, March 14\, 2026\n2:00-3:00pmET\n(starts at 11:00amPT\, 12:00pmMT\, 1:00pmCT) \nWHEREVER YOU ARE You can share what you have been up to\, play trivia when everyone hears the question then decides if it is thumbs up (yes) or thumbs down (no)\, and maybe even shake your shamrock remembering our 6 year anniversary of starting virtual zoom events with the\nShake Your Shamrock Dance Party!
URL:https://fragilex.org/event/thumbs-up-thumbs-down-march-themed-trivia-fun/
CATEGORIES:Online Only
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/03/Screenshot-2026-03-09-at-1.41.58-PM.png
ORGANIZER;CN="Diane Southard":MAILTO:southard5@sbcglobal.net
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260329T120000
DTEND;TZID=America/New_York:20260329T160000
DTSTAMP:20260403T083453
CREATED:20260310T160915Z
LAST-MODIFIED:20260310T160915Z
UID:91483-1774785600-1774800000@fragilex.org
SUMMARY:10th Annual Hadley Corn Hole Championship
DESCRIPTION:Come play corn hole for registration fee $40 per two\, free food! \nRegistration 12pm\, play starts at 1pm. \nHuge raffle starting at 1 pm all are welcome to buy tickets\, check the Facebook event page for pictures of prizes.
URL:https://fragilex.org/event/10th-annual-hadley-corn-hole-championship/
LOCATION:Hadley American Legion Post 271\, 162 Russell Street\, Hadley\, MA\, 01035\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/jpeg:https://fragilex.org/wp-content/uploads/2026/03/corn-hole-scaled.jpg
ORGANIZER;CN="NFXF Western Massachusetts Chapter":MAILTO:westernma@fragilex.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260408T193000
DTEND;TZID=America/New_York:20260408T220000
DTSTAMP:20260403T083453
CREATED:20251024T011108Z
LAST-MODIFIED:20260305T184816Z
UID:89597-1775676600-1775685600@fragilex.org
SUMMARY:FX Dadʼs Chat
DESCRIPTION:There are nine dates between October 2025 and June 2026 in this monthly Zoom get-together for dads\, hosted by the NFXF Connecticut Chapter. You do not need to be a chapter member — all are welcome! They each run from 7:30 through 10:00 pm (ET)\, but youʼre welcome to join when you can and stay as long as you can. \nPlease note that depending on when you first register\, you will be registered for up to nine meetings between October 2025 and June 2026 (dates listed below)\, and you may attend as many as youʼd like. If you’d like to learn more\, please reach out to Andy Selinger at 860-205-3929 or connecticut@fragilex.org. \nTime: 7:30–10 pm ET \nDates: All are Wednesdays \n\nOctober 8\, 2025\nNovember 5\, 2025\nDecember 3\, 2025\nJanuary 7\, 2026\nFebruary 4\, 2026\nMarch 4\, 2026\nApril 8\, 2026\nMay 6\, 2026\nJune 3\, 2026\n\nRegister Now
URL:https://fragilex.org/event/fx-dad%ca%bcs-chat/
CATEGORIES:Social Events
ATTACH;FMTTYPE=image/jpeg:https://fragilex.org/wp-content/uploads/2025/09/dads-chat-featured.jpg
ORGANIZER;CN="NFXF Connecticut Chapter":MAILTO:connecticut@fragilex.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260414T190000
DTEND;TZID=America/New_York:20260414T200000
DTSTAMP:20260403T083453
CREATED:20260310T225743Z
LAST-MODIFIED:20260311T150826Z
UID:91491-1776193200-1776196800@fragilex.org
SUMMARY:Females with FXS Webinar Series: Tools & Tactics for Anxiety
DESCRIPTION:The NFXF & LivJoy Foundation Present Females with Fragile X Syndrome Webinar Series: Tools & Tactics for Anxiety \nWe have assembled an incredible multidisciplinary panel to address specific questions from families and self-advocates about anxiety: Rebecca Shaffer\, Debra Reisinger\, Nicole Tartaglia\, and Jane Roberts. \nWe anticipate topics to include talking about what anxiety is\, go-to tactics to help acknowledge and address anxiety symptoms\, and helpful daily practices. \nWe are excited to have a special focus on females\, as girls and women sometimes feel neglected and their needs are different. The goal is to address any differences or specifics to females with FXS how to live a healthy life (physically\, mentally)\, navigate puberty & sexuality\, and plan for their future. \nRegister Now \n 
URL:https://fragilex.org/event/females-with-fragile-x-syndrome-tools-tactics-for-anxiety/
CATEGORIES:Educational|Webinar
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/03/2026-Females-with-FXS-Tools-Tactics-for-Anxiety-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260418T140000
DTEND;TZID=America/New_York:20260418T150000
DTSTAMP:20260403T083453
CREATED:20260316T210352Z
LAST-MODIFIED:20260316T210352Z
UID:91589-1776520800-1776524400@fragilex.org
SUMMARY:SSAN April Zoom - Chit Chat with Dillon and Kelley
DESCRIPTION:Dillon and Kelley will introduce our “mystery” guest(s) from the Fragile X Community. We will reveal in April who the guest(s) are via Facebook. They will ask some fun questions. Our guest(s) will share some information then everyone will also have the chance to share. Our guest(s) will then close out our hour (before closing remarks) with a game of Would you Rather? \nPlease join our Facebook Page to get Zoom information or email sibselfrl@fragilex.org for details.
URL:https://fragilex.org/event/ssan-april-zoom-chit-chat-with-dillon-and-kelley/
LOCATION:Zoom
CATEGORIES:Online Only
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/03/Screenshot-2026-03-16-at-2.00.32-PM.png
ORGANIZER;CN="Diane Southard":MAILTO:southard5@sbcglobal.net
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260512T190000
DTEND;TZID=America/New_York:20260512T200000
DTSTAMP:20260403T083453
CREATED:20260310T230610Z
LAST-MODIFIED:20260311T150505Z
UID:91494-1778612400-1778616000@fragilex.org
SUMMARY:Females with FXS Webinar Series: Health\, Wellness & Fertility
DESCRIPTION:The NFXF & LivJoy Foundation Present Females with Fragile X Syndrome Webinar Series: Health\, Wellness & Fertility \nWe have assembled an incredible multidisciplinary panel to address specific questions from families and self-advocates about health\, wellness\, and fertility: Vicki Wilkins\, Deby Barbouth\, Heather Hipp\, and Makenzie Woltz. \nWe anticipate topics to include talking about health and wellness broadly\, touching on physical and mental health\, and talking through puberty & sexuality\, from menstruation through family planning options. \nWe are excited to have a special focus on females\, as girls and women sometimes feel neglected and their needs are different. The goal is to address any differences or specifics to females with FXS how to live a healthy life (physically\, mentally)\, navigate puberty & sexuality\, and plan for their future. \nRegister Now
URL:https://fragilex.org/event/females-fxs-webinar-puberty-sexuality/
CATEGORIES:Educational|Webinar
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/03/2026-Females-with-FXS-Health-Wellness-and-Fertility.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260716
DTEND;VALUE=DATE:20260720
DTSTAMP:20260403T083453
CREATED:20250919T232646Z
LAST-MODIFIED:20251024T005823Z
UID:89248-1784160000-1784505599@fragilex.org
SUMMARY:The 2026 20th NFXF International Fragile X Conference
DESCRIPTION:Save the date! Additional information will be added as it becomes available. Also see the NFXF International Fragile X Conference main page.
URL:https://fragilex.org/event/2026-20th-nfxf-international-fragile-x-conference/
LOCATION:Louisville Marriot Downtown\, 280 W. Jefferson St.\, Louisville\, KY\, 40202\, United States
CATEGORIES:Educational,Social Events
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2025/03/events-conference-featured.png
ORGANIZER;CN="National Fragile X Foundation":MAILTO:contact@fragilex.org
END:VEVENT
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