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X-WR-CALDESC:Events for NFXF
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261029T190000
DTEND;TZID=America/New_York:20261029T200000
DTSTAMP:20261015T172311Z
CREATED:20261015T165255Z
LAST-MODIFIED:20261015T172311Z
UID:93991-1793300400-1793304000@fragilex.org
SUMMARY:FXS in Females: Current Research & What's Ahead
DESCRIPTION:This webinar brings together Fragile X researchers who are dedicated to research focused on females living with Fragile X syndrome. Hear from these incredible presenters as they share their research\, emerging findings\, and ongoing work in this important and understudied area. Learn why research focused specifically on females with FXS matters\, what we’re discovering\, and what questions and opportunities lie ahead. \nPanelists: Jessica Klusek\, Lauren Jenner\, Marcae Robertson\, and Audra Sterling \nThe Females with Fragile X Webinar Series: We are excited to focus on females\, as girls and women sometimes feel neglected and have different needs. The goal is to address the specific needs of females with FXS and how to live a healthy life and plan for their future. \nRegister for FXS in Females: Current Research & What’s Ahead
URL:https://fragilex.org/event/fxs-females-current-research/
LOCATION:Zoom
CATEGORIES:Online Only|Webinar
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/10/2026-Webinar-FXS-in-Females-1.png
ORGANIZER;CN="National Fragile X Foundation":MAILTO:contact@fragilex.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261010T140000
DTEND;TZID=America/New_York:20261010T150000
DTSTAMP:20261001T200850Z
CREATED:20261001T200756Z
LAST-MODIFIED:20261001T200850Z
UID:93743-1791640800-1791644400@fragilex.org
SUMMARY:SSAN Scary/Not SO Scary Movie Jeopardy
DESCRIPTION:Join us as we test our knowledge of Scary and Not-So-Scary Movies in a game of Scary Movie Jeopardy! \nCostumes Encouraged! \nBYOC (Bring Your Own Candy)! \nContact Diane Southard at southard5@sbcglobal.net for more information.
URL:https://fragilex.org/event/ssan-scary-not-so-scary/
CATEGORIES:Online Only,Social Events
ATTACH;FMTTYPE=image/jpeg:https://fragilex.org/wp-content/uploads/2026/10/scary-event-featured.jpg
ORGANIZER;CN="Sibling and Self-Advocate Network":MAILTO:southard5@sbcglobal.net
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261003T120000
DTEND;TZID=America/New_York:20261003T150000
DTSTAMP:20260916T194309Z
CREATED:20260721T172038Z
LAST-MODIFIED:20260916T194309Z
UID:93156-1791028800-1791039600@fragilex.org
SUMMARY:5th Annual Picnic in the Park
DESCRIPTION:Cincinnati Fragile X Research and Treatment Center presents its annual friends-and-family picnic. Join us for connection\, food\, and fun times! \nLocation:\nWeston Shelter at Woodland Mound\n8250 Old Kellogg Road\nCincinnati\, OH 45255 \nWhen: October 3 @ 12:00-3:00 EST\nRSVP: hannah.sachs@cchmc.org
URL:https://fragilex.org/event/5th-annual-picnic-cincinnati/
LOCATION:Weston Shelter at Woodland Mound\, 8250 Old Kellogg Rd.\, Cincinnati\, OH\, 45255\, United States
CATEGORIES:Social Events
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/09/picnic-park-featured.png
ORGANIZER;CN="Cincinnati Fragile X Research and Treatment Center":MAILTO:fragilex@cchmc.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260930T120000
DTEND;TZID=America/New_York:20260930T130000
DTSTAMP:20260916T194101Z
CREATED:20260911T174821Z
LAST-MODIFIED:20260916T194101Z
UID:93591-1790769600-1790773200@fragilex.org
SUMMARY:Cincinnati Family Input Meeting
DESCRIPTION:Please join the Cincinnati Fragile X Research & Treatment Center\, including Dr. Erickson\, Dr. Reisinger\, and our new Family Support Lead\, Hannah Sachs\, to provide input on our research and clinical activities. We value everyone’s input and appreciate your voice in shaping the future of our Fragile X program! \nYour voice matters! Join us to share your opinions and input on our Cincinnati Fragile X Center. \nNo registration required\, however you can visit the event page to add this to your calendar. Or\, please join us on September 30\, 2026\, at noon (ET) using this link (also available in the flyer). \nDownload the flyer
URL:https://fragilex.org/event/cincinnati-family-input-meeting/
CATEGORIES:Online Only
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/09/family-input-meeting-flyer-featured.png
ORGANIZER;CN="Cincinnati Fragile X Research and Treatment Center":MAILTO:fragilex@cchmc.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260927T170000
DTEND;TZID=America/New_York:20260927T190000
DTSTAMP:20260827T214037Z
CREATED:20260827T214037Z
LAST-MODIFIED:20260827T214037Z
UID:93486-1790528400-1790535600@fragilex.org
SUMMARY:Cork and Cafe 2026
DESCRIPTION:Swirl\, smell\, and sip your choice of 50 wines plus appetizers from Esselon Cafe\, all while supporting families living with Fragile X! \nWhen: September 27\, 2026 @ 5 PM to 7 PM\nLocation: Esselon Cafe @ 99 Russell Street\, Hadley\, Mass. \nThe evening will also include delicious appetizers\, a silent auction\, and fantastic door prizes from local businesses and friends. If you are not a wine drinker\, the cafe staff will be ready to prepare a drink from their menu.  \nLearn more and get your tickets.
URL:https://fragilex.org/event/cork-and-cafe-2026/
LOCATION:Esselon Cafe\, 99 Russell Street\, Hadley\, MA\, 01035\, United States
ATTACH;FMTTYPE=image/jpeg:https://fragilex.org/wp-content/uploads/2026/08/wine-glasses-devine.jpg
ORGANIZER;CN="NFXF Western Massachusetts Chapter":MAILTO:westernma@fragilex.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260725T100000
DTEND;TZID=America/New_York:20260725T170000
DTSTAMP:20260721T175504Z
CREATED:20260721T173656Z
LAST-MODIFIED:20260721T175504Z
UID:93161-1784973600-1784998800@fragilex.org
SUMMARY:Little Rhody Warriors 2026 Fragile X Awareness Walk
DESCRIPTION:Join us at Warwick City Park for a morning of fun to bring awareness to Fragile X Syndrome! We will have fun activities for kids and adults. Enjoy a bounce house\, refreshments\, and more! Contact us at fxslittlerhodywarriors@yahoo.com if you have any questions. \nWhen: July 25\, 2026 @ 10 am (all day) \nLocation:\nWarwick City Park\n185 Asylum Road\nWarwick\, RI 02889 \nQuestions?\nContact: Marcella Almeida\nPhone: 401-226-4327\nEmail: fxslittlerhodywarriors@yahoo.com \nRegister\n 
URL:https://fragilex.org/event/little-rhody-warriors-2026-fragile-x-awareness-walk/
LOCATION:Warwick City Park\, 185 Asylum Road\, Warwick\, RI\, 02889\, United States
CATEGORIES:Social Events,Walk or Run
ORGANIZER;CN="Little Rhody Warriors":MAILTO:fxslittlerhodywarriors@yahoo.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260722T200000
DTEND;TZID=America/New_York:20260722T210000
DTSTAMP:20260721T175329Z
CREATED:20260721T175023Z
LAST-MODIFIED:20260721T175329Z
UID:93172-1784750400-1784754000@fragilex.org
SUMMARY:Light the Way for Fragile X
DESCRIPTION:Join us at the Rhode Island State House on Wednesday\, July 22\, 2026\, for National Fragile X Awareness Day! Our beautiful State House will light up in teal to raise awareness of Fragile X Syndrome. Lighting sponsored by State Representative Thomas E. Noret. \nLocation:\nRhode Island State House\n82 Smith Street\nProvidence\, RI 02903 \nWhen: Wednesday\, July 22\, 2026 @ 8 pm \nQuestions?\nContact: Marcella Almeida\nPhone: 401-226-4327\nEmail: fxslittlerhodywarriors@yahoo.com \nNo registration required\, come on down! \n 
URL:https://fragilex.org/event/light-the-way-for-fragile-x/
LOCATION:Rhode Island State House\, 82 Smith Street\, Providence\, RI\, 02903\, United States
CATEGORIES:Advocacy,Social Events
ORGANIZER;CN="Little Rhody Warriors":MAILTO:fxslittlerhodywarriors@yahoo.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260602
DTEND;VALUE=DATE:20260801
DTSTAMP:20260616T191122Z
CREATED:20260602T161243Z
LAST-MODIFIED:20260616T191122Z
UID:92756-1780358400-1785542399@fragilex.org
SUMMARY:NFXF X Strides 2026
DESCRIPTION:Join us for this year’s X Strides to raise awareness and funds to support the Fragile X community! We focus our awareness efforts during July\, Fragile X Awareness Month\, but feel free to start early or hold your walk or gathering anytime! You can register as an individual\, start a team\, or join an existing team! \nWHO: Anyone! \nWHAT: Walk\, run\, bike\, hike\, gather at a park\, play your favorite games\, schedule a get-together on Zoom. You decide what you want to do to raise awareness of Fragile X. Take photos in your Fragile X gear and share on social media. \nWHEN: Anytime during the month of July\, Fragile X Awareness Month. \nWHERE: Anywhere you choose! \nCOMING TO CONFERENCE?  We’re having an X Strides walk for ALL conference attendees on Friday morning July 17\, walking from the hotel to 4th Street and back! \nWHY: To support the National Fragile X Foundation to provide knowledge\, resources and tools for all families impacted by Fragile X. \nPRIZES: this year’s prizes include NEW custom “X” green sneakers for top fundraisers!
URL:https://fragilex.org/event/nfxf-x-strides-2026/
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://fragilex.org/wp-content/uploads/2026/04/FEX-2026_XStrides-HorizLogo-e1781636706171.png
ORGANIZER;CN="National Fragile X Foundation":MAILTO:contact@fragilex.org
END:VEVENT
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