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“It’s all about practical ways to support our FX children. I left with many ideas to use in my FX child’s real life.”

On November 12, 2016, the Fragile X Society of Connecticut hosted it’s 9th annual conference, attended by 140 professionals and parents from nine states on the east coast. Six CSN groups were also represented. Informative presentations were given by Dr. Jennifer Epstein, Dr. Jane Thierfeld Brown and Dr. Jonathan Picker. Half of the attendees had never been to a Fragile X conference before! As one attendee said, “I liked that it brought together parents and educators. I was able to speak and hear from parents about their thoughts, struggles and methods.”

A highlight was a video message to the Fragile X community from Senator Chris Murphy (CT), who recognized the group’s advocacy accomplishments as a small, but out-sized, voice of success in Washington.

One attendee shared, “The material and information that can be used on Monday is very exciting. I look forward to sharing information with my student’s team ASAP.”