Governor Henry McMaster, R-SC, has proclaimed Sunday, July 22, 2018, as Fragile X Awareness Day in South Carolina.
To leverage this and raise awareness among South Carolina policy makers, Fragile X families are gathering at 11 AM on Monday, July 23, 2018 at the State Capitol in Columbia.
It is important that you attend. The more families that can come, the more attention we can get to educate policy makers about Fragile X. Siblings and self-advocates are both welcomed and encouraged to attend.
If you think you might be able to make it – even if you don’t know for sure – please RSVP here or email Roger and Faye Kuperman, NFXF South Carolina Chapter leaders, at firstname.lastname@example.org as soon as possible. Note – this isn’t limited to families in South Carolina.