Are you a healthcare provider or the parent or caregiver of a child, adolescent or young adult diagnosed with Fragile X syndrome?

If so, you’re invited to join a live webinar hosted by Dr. Victoria L Wilkins, the Medical Director of Experience of Care at Primary Children’s Hospital at The University of Utah and Dr. Randi Hagerman – the medical director of the MIND Institute at UC Davis Health. Gregg Harper will also join as both a patient advocate and parent of a son with Fragile X.

You will have the opportunity to ask questions of experts in the field. Registration is required to attend. You may register even if you are unable to attend the live event. All registrants will receive a recording after the session.

Topics to be discussed include:

• Discussion on FXS
• The importance of clinical trials in addressing the unmet needs
  of families with Fragile X
• The latest clinical research studies underway
• How to best advocate for your loved one and family
• Q&A discussion

After completing your registration, you will receive a confirmation email. You may need to check your spam/junk folders. The email will be titled: Fragile X Syndrome: Clinical Research Update Confirmation.

Event Details:

• Date: May 31, 2023
• Location: Virtual
• Registration: Registration (gotowebinar.com)
• Time: 1:30 PM – 2:30 PM MT

Questions:

• Contact: carly.straley@hsc.utah.edu

Logistic support for this event provided by Zynerba Pharmaceuticals.