NFXF Webinar Series – Aging in Fragile X Syndrome
May 10 @ 3:00 PM – 4:00 PM EDT
With Elizabeth Berry-Kravis, MD, PhD
Dr. Berry-Kravis joins us to discuss what we’ve learned about the problems that face adults living with Fragile X syndrome from participation in the FORWARD database. She reviews the data we have learned so far about what adults are doing in their community and their living situation.
The following link is a collection of information and resources focused on adulthood you may want to review prior to the webinar:
Below are links to publications resulting from FORWARD data:
- Height and BMI – A Longitudinal Assessment
- Psychotropic Drug Treatment Patterns in Persons with FXS
- FXS and Language Across the Lifespan
- Health Related Quality of Life
The webinar will be recorded and available to all registrants.
About Elizabeth Berry-Kravis, MD, PhD.
Elizabeth Berry-Kravis, MD, PhD, is a professor of Pediatrics, Neurological Sciences, Anatomy and Cell Biology at Rush University Medical Center in Chicago. She attended the University of Notre Dame for her undergraduate studies and the University of Chicago for her medical degree, PhD, and training in pediatric neurology. In 1992, Dr. Berry-Kravis established the Fragile X Clinic and Research Program, through which she provides care to over 700 patients with Fragile X syndrome.
She has studied Fragile X syndrome medical issues, epilepsy, and psychopharmacology, and has been a leader in translational research, including the development of outcome measures and biomarkers, natural history studies, newborn screening, and particularly clinical trials of new targeted treatments.
Her laboratory studies cellular roles of the Fragile X protein (FMRP), its relationship to phenotypes, and optimization of genetic testing methods.