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National Fragile X Awareness Day

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On July 12, 2000, the United States Senate designated July 22 as National Fragile X Awareness Day, which makes this year — Wednesday, July 22, 2020 — the 20th Fragile X Awareness Day.

Each year, the NFXF and the Fragile X community work together to expand public awareness of Fragile X, including Fragile X syndrome, Fragile X-associated tremor/ataxia syndrome, and Fragile X-associated primary ovarian insufficiency, and educate those who are in a position to help make a difference: doctors and all medical professionals, therapists, geneticists, teachers, researchers, federal and state policymakers, and so many more.

We’ll have something new to share every day in July, so watch our events, blog, and social media for more. And if you haven’t already, please subscribe to our emails.

Also, this year’s July 22 Awareness Day coincides with the last of three events in the 17th NFXF International Fragile X Conference — Virtual Series, a GREAT way to learn more about Fragile X! If you’re not already registered, read on:

Fragile X Research Roundup: Join us and hear from those researching Fragile X. Presenters range from basic scientists to those conducting clinical trials for treatments. You can join in on live sessions with Q&A from top researchers on the hottest research topics in Fragile X, plus more than 30 on-demand sessions about recently completed or ongoing studies. And note that registering for this event also gives you access to all of our sessions (May 29-30, June 27, and July 22), available on-demand through the end of 2020.

Learn more and register for the Fragile X Research Roundup.