REMINDER: Please RSVP below if you can join us.
Fragile X Southwest Community Event organized by Phoenix Children’s Hospital to be held on July 13, 2019.
The event is designed to provide families with an opportunity to:
- discuss topics and concerns relevant to the diagnoses and treatment of Fragile X Syndrome (FXS)
- learn more about research being conducted in Fragile X and other conditions including Autism, Mitochondrial Dysfunction and language delays
(Subject to Change)
10:00 AM – 11:00 am (light refreshments provided)
Richard Frye, MD, PhD, Phoenix Children’s Hospital
Overview of current clinical work in FXS and other conditions
11:00 am– 12:00 pm
Jayne Dixon Weber, Director, Community Services, National Fragile X Foundation (NFXF)
Lessons learned from raising a son with FXS from childhood to an adult. Information about the NFXF.
12:00 pm – 12:30 pm – Lunch (provided)
12:30 – 1:00 pm
Joel Hanania, PhD, Psychologist, Phoenix Children’s Hospital
Discussion of issues that individuals with FXS experience in school and seeking services
1:00 pm – 1:30 pm
Christopher Smith, PhD, Southwest Autism Research & Resource Center (SARRC)
Overview of services provided and research being conducted at SARRC
1:30 pm – 2:30 pm
Parent perspectives on raising children with FXS. Discussion of strategies used in daily lives, diet, occupation and physical therapies.
2:30 pm – 3:00 pm
Occupational Therapy (TBA)
Discussion of service available for children with FXS
3:30 pm – 4:00 pm
Richard Frye, MD, PhD and Jayne Dixon Weber
**Childcare services will not be provided.
PLEASE RSVP BELOW