Children’s Hospital of Orange County – Upcoming Live Webinar: Fragile X and Clinical Research
April 25 @ 4:00 PM – 5:00 PM PDT
Are you a healthcare provider or the parent or caregiver of a child, adolescent or young adult diagnosed with Fragile X syndrome?
If so, you’re invited to join a live webinar hosted by Dr. Sailaja Golla – the director of the Fragile X Clinic at Thompson Autism and Neurodevelopmental Center and Dr. Randi Hagerman – the medical director of the MIND Institute at UC Davis Health. Gregg Harper will also join as both a patient advocate and parent of a son with Fragile X.
You will have the opportunity to ask questions of experts in the field. Registration is required to attend. You may register even if you are unable to attend the live event. All registrants will receive a recording after the session.
Topics to be discussed include:
- Discussion on FXS
- The importance of clinical trials in addressing the unmet needs
of families with Fragile X
- The latest clinical research studies underway
- How to best advocate for your loved one and family
- Q&A discussion
After completing your registration, you will receive a confirmation email. You may need to check your spam/junk folders. The email will be titled: Fragile X Syndrome and Clinical Research Webinar Confirmation.
- Date: April 25, 2023
- Location: Virtual
- Registration: Registration (gotowebinar.com)
- Time: 4:00 PM – 5:00 PM PT
- Contact: firstname.lastname@example.org
Logistic support for this event provided by Zynerba Pharmaceuticals.