2023 Advocacy Day

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2023 Advocacy Day

February 27 @ 1:00 PMFebruary 28 @ 5:00 PM EST


Join us for an in-person NFXF Advocacy Day for February 27- February 28, 2023. Nearly 100% of Congressional offices are accepting in-person meetings. Congressional offices are not having some people in-person and some virtual in the same meeting. Registration is open: Advocacy Day 2023 – Campaign (fragilex.org)


Training will include a combination of mandatory online self-paced training ahead of time and group training/preparation at the Embassy Suites on the afternoon of Monday, February 27. We will also be hosting a virtual Zoom meeting earlier in the month of February for new or returning advocates.

Agenda: (specific times will be shared closer to the event)

  • Monday, February 27th: Afternoon training and reception with light snacks
  • Tuesday, February 28th: Meetings at Capitol Hill


Scholarships (up to $500 per advocate) are available for individuals, families, self-advocates, or siblings who have not previously attended a NFXF Advocacy Day in Washington, D.C. or advocates who might not otherwise be able to attend due to limited financial resources.

Applications due January 6, 2023.

Learn More and Apply: https://info.fragilex.org/advocacy-scholarship-2023


Embassy Suites Crystal City| 1393 S. Eads St., Arlington, VA, US

The Embassy Suites has a free shuttle from Reagan National Airport (DCA) and is close to the Yellow Line Metro. Parking is available on-site for an additional fee.

The special room rate is available until February 7, 2023, or until the group room block the NFXF has acquired is sold out, whichever comes first. Any cancellation requests must be done 72 hours prior to your arrival date to avoid losing your deposit(s). 


  • Single/Double occupancy: $185.00 + taxes
  • Triple/Quadruple occupancy: $199.00 + taxes

Book Now


February 27 @ 1:00 PM EST
February 28 @ 5:00 PM EST
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Washington, D.C.
1393 S. Eads St.
Arlington, VA 22202 United States
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