NFXF Connecticut Chapter | National Fragile X Foundation

Northeast Region

West Hartford, Connecticut
860-233-1904

Leadership

Tammy Selinger

Andy Selinger

About Our Group

Our Community Support Network (CSN) group was established in 1995 by Tammy and Andy Selinger, who are the parents of two adults, Jodi (1990) and Brian (1993), both affected by the full mutation of Fragile X. Throughout the years, our group maintained a presence in Connecticut by involvement in awareness activities, social events, fundraisers, emotional and educational support as well as state and federal advocacy. In the Fall of 2008 we hosted our First Annual Educational Conference. Many more events have followed.

Recent Happenings

Moms Night Out: Burgers with Buddies!

May 11, 2017 – Moms of children with Fragile X met at the Artisanal Burger Company to spend time with friends while enjoying delicious handcrafted burgers made with fresh, local ingredients. The moms, Madelene, Orna,

on 07 June 2017 | No Comments

Passion for Community and Support Key to Success for Annual Conference

When Tammy and Andy Selinger received their daughter’s diagnosis in 1994, even their doctor was unsure what it meant. He just told them the test was positive for Fragile X. One of their first calls was to the National Fragile X Foundation, where they were connected to a long-time volunteer, Margaret Israel, who spent more than an hour and half on the phone with them. The support they found during such a critical time motivated them to get involved because as Andy says, “Nobody should get diagnosed without someone to talk to.”

on 22 February 2017 | No Comments

Moms' Night out with Connecticut and Western MA

It's always fun with moms get together and share stories and good times!

on 09 February 2017 | No Comments

Connecticut Hosts Targeting Social Skills and Behavioral Strategies for School, Work and Fun

On November 12, The Fragile X Society of Connecticut hosted it's 9th annual conference, attended by 140 professionals and parents from nine states on the east coast.

on 06 January 2017 | No Comments

Upcoming Events

We are looking for volunteers to help organize events, if you are interested in joining our group and assisting with events, please contact us at connecticut@fragilex.org