By Missy Zolecki
The NFXF Western Massachusetts Chapter set a goal to make connections with Fragile X community members outside of their local area. Chapter leader, Denise Devine, took to the road and organized a gathering at a local Bistro in Waltham, MA. Denise said the evening included “great food and company”! The lively discussion included sharing of ideas and programs.
Thank you, Denise, Rachel and Joan, for an evening of connection and sharing!
Fragile X Advocacy in 2021
Gregg Harper discusses NFXF advocacy successes from 2020, 2021 Advocacy Day, and more.
Camping and Fragile X
Because of the hard work of NFXF advocates over the past 20 years, decision-makers in Congress know what Fragile X is. Being present, persistent, and problem-solving is what gets things done in Congress.