Like many of you, I will always remember the day and time when I received the diagnosis of our son, Ian. Fragile X syndrome – never heard of it. These are the lessons my family has learned since that time.
Can you believe your child is starting high school? I know, they were just a toddler yesterday. As you begin this important part of your journey, remember the specifics of this information varies by state, school district and even by school. You know your child best so you want to set up services that work for your child. I tried to cover all aspects for all children with all their varying abilities so some of these items may not apply to you. This might look overwhelming, but if you take it one step at a time, you’ll do great!
Getting to know your local firefighters can help you and your child(ren) with Fragile X syndrome in so many more ways than you think. Read about how to engage them and how it will help your family.
Going to an IEP meeting was always an emotional experience for me. After a couple of years of meetings with a group of people—teachers, psychologists, administrators—who had obviously already made many decisions regarding my son ... I decided to make some changes.
For years, education and special education services—including therapy, counseling and practices geared toward providing the “least restrictive environment”—have been the mainstay for children, adolescents and young adults with Fragile X syndrome (FXS). While intervention literature ...