By Jasmine Shen
For young adults with Fragile X syndrome (FXS), having daily, scheduled activities is critical to creating structure and staying engaged and active. Once they’re out of high school, a huge part of their usual routines are gone and need to be replaced with new structure and activities.
Routine activities such as working at a paying job, volunteering, or participating in a day program are all good options. Here are some tips to figure out what type of activities are available and should be considered.
Access Your High School’s Transition Program
High schools often have transition programs for ages 18-21, with some offering programs beyond age 21. These programs vary by school (and state) but are often geared toward providing individuals with the opportunity to try different jobs, expand their life skills, and work on academic and functional skills.
The main objective is to provide individuals with FXS the ability to create an established routine as they transition out of school services. To find additional information on high school transition programs, contacting your local Arc, disability organization, or parent group (including the NFXF Community Support Network) is a good place to start.
While these schedules can be fluid and changed over time, providing structure to your young adult’s life sets expectations for each day. As you build the schedule, you can begin to incorporate chores and other activities into the schedule.
While transition programs provide a great opportunity for individuals to discover and understand which activities they’re best suited for, it’s your responsibility as a parent or primary caregiver to set your young adult’s daily schedule.