By Emily Mack

My name is Emily Mack, and my husband Greg and I are parents to Gavin who lives with Fragile X syndrome. I’m also currently the board president of the National Fragile X Foundation. We wanted to explain to you why the NFXF is so important to us.

Not only does the NFXF provide us with support each and every day as we navigate the journey of Fragile X syndrome, but it also gives us a lot of hope for what is to come in the future and all the opportunities that are ahead for Gavin and for us as a family.

Starting today, December 6, 2021, we will match up to $4,000 in contributions from first-time donors this month, as part of our commitment to the NFXF and Gavin’s future.

If you haven’t already done so this year, please join us in supporting the NFXF — and double your impact — by making your secure donation today (or use the form on this page).

If you sign-up to give monthly, Greg and I will match your total gifts pledged for the first year. So, thinking of giving $100? Give $10 a month. Monthly gifts help the NFXF provide programming all year long, and you will be able to manage your monthly gift whenever you like via our online donor portal. Setup your monthly gift today or use the form on this page.

Thank you for your support. Together, We’re Stronger.

— Emily & Greg Mack

Note: It took only a few days to match the amount, but we still need your help. Please consider a donation of any size to help us with our mission.

Emily Mack

Emily Mack
Emily is the proud mother of a blended family of five kids and current president of the NFXF Board of Directors. She was introduced to Fragile X in February 2011 after her son was diagnosed at 2 years old. She has worked in corporate wellness as an exercise physiologist and wellness coach since the early 2000s at a large hospital system, at on-site worksite wellness programs, and in private practice.