Home /

NFXF Blog

Browse using our topic and condition filters below the featured articles. For more detailed results, please use our Search bar at the top of the page. For webinars, please visit Webinars and Videos.

Featured

A group lifts their arms to the sky celebrating the amazing new CDC opportunity and grant to help inform more people about FXS.

NFXF & Programs
Research

NFXF Awarded $1 Million CDC Grant to Expand Resources, Support, and Healthcare Capacity for the Fragile X Community

October 1, 2026

03 mins read

The initiative will build on our 40 years of work, promoting broader use of evidence-based information among individuals with FXS, caregivers, family members, community partners, and healthcare providers nationwide.

Read Now

LATEST IN: Caregiving

view all

Why Fragile X Syndrome Treatment Information Feels So Confusing

September 24, 2026

08 mins read

FXS Tips & Support for Traveling + Free Downloads

June 24, 2026

06 mins read

LATEST IN: Advocacy

view all

Advocacy is Year-Round: What That Looks Like

October 1, 2026

05 mins read

Understanding What the Texas v. Kennedy Ruling Means for Community Living

September 28, 2026

03 mins read

All Articles

Filter by conditon

Filter by topic

Additional Filters

Symposium Summary: Prenatal and Newborn Screening in Fragile X Syndrome

September 16, 2026

05 mins read

Carme Torrents, MD, a 2026 Jr. Investigators Awardee, summarizes an important symposium by Drs. Elizabeth Smith, Tatyana Adayev, and Anne Wheeler, during the 20th International Fragile X Conference.

Read Now

FXTAS Neuromotor Signs in Women with the FMR1 Premutation: Elevated Risk at Mid-Range CGGs and Attenuation by College Degree Attainment

September 9, 2026

04 mins read

Tetsuya Asano, a 2026 Jr. Investigators Awardee, summarizes an important talk by Jessica Klusek during the 20th International Fragile X Conference.

Read Now

FMR1 Carriers Report Executive Function Changes Prior to Fragile X-Associated Tremor/Ataxia Syndrome: A Longitudinal Study

April 25, 2024

06 mins read

Research Summary: This research was very revealing. Currently, we do not have accurate methods to predict who will develop FXTAS and who will not, or when the disease will start.

Read Now