NFXF Blog

Browse using our topic and condition filters below the featured articles. For more detailed results, please use our Search bar at the top of the page. For webinars, please visit Webinars and Videos.

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Collection of awardees.
  • NFXF & Programs

Our 2026 NFXF Awardees

July 28, 2026
06 mins read

Our 2026 NFXF awards are in! Learn more about each award and the respective awardees.

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LATEST IN: Caregiving
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FXS Tips & Support for Traveling + Free Downloads
June 24, 2026

06 mins read

Two Letters for Parents With a New Fragile X Syndrome Diagnosis
May 5, 2025

04 mins read

LATEST IN: NFXF & Programs
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FXTAS Neuromotor Signs in Women with the FMR1 Premutation: Elevated Risk at Mid-Range CGGs and Attenuation by College Degree Attainment
September 9, 2026

04 mins read

Characterizing Populations Based on Proximity to a Fragile X Syndrome Specialty Clinic
September 2, 2026

04 mins read

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Since 2010, the NFXF and the Fragile X community have continued to advocate in Congress for policies and research funding for Fragile X-associated conditions and disorders.
Research Funding Opportunity from CDMRP/PRMRP for Fiscal Year 25
May 21, 2025
03 mins read

Announcing FY 2025 federal research funding opportunities across two award categories available for all Fragile X-associated conditions and disorders.

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Funding sign.
Research Funding Opportunity: RFA-HD-25-002: Centers for Collaborative Research in Fragile X and FMR1-Associated Conditions
July 1, 2024
03 mins read

The National Institute of Health (NIH) recently released a Request for Applications (RFA) for research in Fragile X syndrome (FXS) and FMR1-associated conditions.

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Research Funding Opportunity from CDMRP/PRMRP for Fiscal Year 24
April 3, 2024
08 mins read
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Research Funding Opportunity from CDMRP/PRMRP for Fiscal Year 23
February 22, 2023
07 mins read

We are sharing information on a 2023 funding opportunity from CDMRP and PRMRP.

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American Academy of Pediatrics Hosts New Course on Fragile X syndrome
August 24, 2022
12 mins read

The American Academy of Pediatrics (AAP), with support from the CDC, hosted “Identification, Management, Caring for Children with Fragile X Syndrome Virtual Course” on June 22, 2022. The course will be available as a free AAP course through August 1, 2025.

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The International Fragile X Premutation Registry: Building a Resource for Research and Clinical Trial Readiness
June 23, 2022
05 mins read
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