NFXF Blog

Learn about CDMRP funding opportunities for research on Fragile X-associated conditions and disorders, including application deadlines, key award mechanisms, and how the NFXF supports researchers.

The Belonging Project aims to intentionally extend our reach to underserved and underrepresented communities across the United States. We have 2025 updates from three Fragile X clinics and our belongingness survey, and we will keep you updated as we continue to move forward.

Announcing FY 2025 federal research funding opportunities across two award categories available for all Fragile X-associated conditions and disorders.

The Congressionally Directed Medical Research Program could face a 57% reduction in funding with the proposed continuing resolution.

One of our newest initiatives aims to intentionally extend our reach to underserved communities across the United States. In partnership with four Fragile X clinics, we’ve begun work to understand the challenges to diagnosis and treatment faced by Black, Hispanic and Native American communities and the providers who serve them.

The National Institute of Health (NIH) recently released a Request for Applications (RFA) for research in Fragile X syndrome (FXS) and FMR1-associated conditions.

PureTech Health has been awarded a grant from the DOD for their trial of LYT-300, oral formulation of allopregnanolone, in people with FXTAS.

We are sharing information on a 2023 funding opportunity from CDMRP and PRMRP.