NFXF Blog
Browse using our topic and condition filters below the featured articles. For more detailed results, please use our Search bar at the top of the page. For webinars, please visit Webinars and Videos.
Featured
September 10, 2025
09 mins read
Congratulations to 2025’s three NFXF Summer Scholars. Meet Susana Lopez-Ignacio, Tanvi Kamra, and Shelby Dauterman!
LATEST IN: Community
Little Rhody Warriors Light the Way for Fragile X
August 13, 2025
01 min read
Moshi Moshi Sushi Fundraiser
July 7, 2025
LATEST IN: Research
A Fresh Approach: CONNECTA Therapeutics and Fragile X Syndrome
October 8, 2025
03 mins read
Update on Harmony Biosciences Fragile X Study: Questions You Have, Answers We Can Give
September 24, 2025
04 mins read
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May 21, 2025
We’re on a mission to enroll 600 participants with FXS born in 2003 through 2020. We’re halfway there and we need your help!
March 12, 2024
05 mins read
Latent Class Analysis Identifies Distinctive Behavioral Subtypes in Children with Fragile X Syndrome
November 23, 2022
05 mins read
February 17, 2022
05 mins read
February 16, 2022
05 mins read
December 28, 2021
05 mins read
More research needs to be done, but knowing more about how FXS differs in people with and without methylation mosaicism may eventually help guide the expectations and treatment of individuals with FXS.
December 16, 2021
05 mins read
December 10, 2021
05 mins read
Findings showed that sleep difficulties are prevalent in children with FXS and, although they tend to be mild, they are associated with behavioral problems and negative impact to families.