NFXF Blog
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Our 2026 NFXF awards are in! Learn more about each award and the respective awardees.
FXS Tips & Support for Traveling + Free Downloads
06 mins read
Two Letters for Parents With a New Fragile X Syndrome Diagnosis
04 mins read
Congratulations to Our 2026 Jr. Investigators Awardees!
02 mins read
University of Minnesota’s Masonic Institute for the Developing Brain (MIDB)
02 mins read
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This research looks at social participation in children with Fragile X syndrome, including key barriers, gender differences, and practical ways families, schools, and communities can support inclusion and engagement.
We’re on a mission to enroll 600 participants with FXS born in 2003 through 2020. We’re halfway there and we need your help!
More research needs to be done, but knowing more about how FXS differs in people with and without methylation mosaicism may eventually help guide the expectations and treatment of individuals with FXS.


