NFXF Blog

Aaron’s story shows why early Fragile X awareness changes lives. Discover how NFXF is launching new caregiver support programs—and how your gift can help.

Meet Maya, whose journey shows what’s possible for females with Fragile X. Discover how NFXF and the LivJoy Foundation are expanding support, awareness, and opportunity.

Meet Jill and her family, whose multi-generational Fragile X story highlights the importance of research, testing, and hope. Learn how new FXTAS clinical trial readiness efforts are paving the way for future treatments.

Meet Will, who lives with Fragile X syndrome and participates in research studies. Learn how your gift on Giving Tuesday will help grow the future of Fragile X research.

Learn how you can help us educate more clinicians about the Fragile X premutation, with a special emphasis on raising awareness for FXPOI, in 2026.

The NFXF joined researchers and clinicians at the 6th International Conference on Fragile X Premutation Associated Conditions in Italy to advance understanding of FXTAS, FXPOI, and related conditions, update treatment recommendations, and strengthen global Fragile X collaboration.

Congratulations to 2025’s three NFXF Summer Scholars. Meet Susana Lopez-Ignacio, Tanvi Kamra, and Shelby Dauterman!

The Belonging Project aims to intentionally extend our reach to underserved and underrepresented communities across the United States. We have 2025 updates from three Fragile X clinics and our belongingness survey, and we will keep you updated as we continue to move forward.

Moshi Moshi is hosting their 6th annual fundraiser to support the NFXF during Fragile X Awareness Month in July.