NFXF Blog

The clinic at the Masonic Institute for the Developing Brain offers personalized evaluation, consultation, treatment, and support for children and adults with Fragile X syndrome and related conditions.

Learn how we are expanding our network of Fragile X clinics to better support individuals living with the Fragile X premutation.

Highlighting the Fragile X Syndrome Multi-Disciplinary Clinic at the University of Michigan Health, a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC).

In 2006, there were 11 medical institutions in the country with doctors and other specialists focusing on Fragile X syndrome. Today, there are more than 30 Fragile X clinics.

The Cincinnati Fragile X Research and Treatment Center provides clinical care for individuals with Fragile X syndrome and related conditions and disorders.

The Fragile X Program provides services and referrals for children and young adults with FXS and FXD, including FXTAS and FXPOI.

An interdisciplinary staff and faculty includes specialists in pediatrics, molecular genetics, psychiatry, psychology, neurology, neurobiology, pathology, and social work.

The clinic serves individuals of all ages with FMR1 mutations, primarily those with either the full mutation or a premutation in the X-linked FMR1 gene.

Nearly 60 doctors, clinic coordinators, and others from 20 of the 32 FXCRC clinics met at the Children’s Hospital outside Denver.