NFXF Blog

Browse using our topic and condition filters below the featured articles. For more detailed results, please use our Search bar at the top of the page. For webinars, please visit Webinars and Videos.

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Collection of awardees.
  • NFXF & Programs

Our 2026 NFXF Awardees

July 28, 2026
06 mins read

Our 2026 NFXF awards are in! Learn more about each award and the respective awardees.

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LATEST IN: Caregiving
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FXS Tips & Support for Traveling + Free Downloads
June 24, 2026

06 mins read

Two Letters for Parents With a New Fragile X Syndrome Diagnosis
May 5, 2025

04 mins read

LATEST IN: NFXF & Programs
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Congratulations to Our 2026 Jr. Investigators Awardees!
May 14, 2026

02 mins read

University of Minnesota’s Masonic Institute for the Developing Brain (MIDB)
February 18, 2026

02 mins read

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Baclofen-Associated Neurophysiologic Target Engagement Across Species in Fragile X Syndrome
January 30, 2024
07 mins read

Research Summary: The results found from the EEGs in both the FMR1 KO mice and humans with FXS are extremely important for the future of FXS research because they show a measurable commonality between the two very different species.

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Dr. Liz Berry-Kravis Explains Important Updates about the Tetra Trials
November 21, 2023
07 mins read
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Allos Pharma Receives FDA Guidance and Support for their Phase 3 Trial of Arbaclofen in Fragile X Syndrome
June 8, 2023
06 mins read

Allos Pharma announced they held a meeting with the FDA to optimize the design of their Phase 3 trial designed to support an NDA to address FXS.

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Now Enrolling! Tetra Therapeutics Shares Details of FXS Trials in a Short Video
March 29, 2023
06 mins read
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Why is the RECONNECT trial with ZYN002 Being Conducted in Fragile X Syndrome?
March 14, 2023
06 mins read

RECONNECT is designed to confirm results of the first randomized, double-blind, placebo-controlled trial of ZYN002 conducted in FXS, CONNECT-FX.

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Healx Shares an Update on Their IMPACT-FXS Trial
October 28, 2022
07 mins read

Healx shares the closing of their IMPACT-FXS trial with plans to open a new study in early 2023.

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Parent and Caregiver Perspectives towards Cannabidiol as a Treatment for Fragile X Syndrome
October 25, 2022
07 mins read
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Zynerba Shares their RECONNECT trial
August 30, 2022
08 mins read
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Opportunity to Learn More about the RECONNECT Trial at the International Fragile X Conference in July!
June 30, 2022
07 mins read
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