NFXF Blog
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The initiative will build on our 40 years of work, promoting broader use of evidence-based information among individuals with FXS, caregivers, family members, community partners, and healthcare providers nationwide.
Why Fragile X Syndrome Treatment Information Feels So Confusing
08 mins read
FXS Tips & Support for Traveling + Free Downloads
06 mins read
Advocacy is Year-Round: What That Looks Like
05 mins read
Understanding What the Texas v. Kennedy Ruling Means for Community Living
03 mins read
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Little Rhody Warriors families held their second annual “Fragile X Awareness Walk” on May 18 in Warwick, Rhode Island. More than 50 family members, caregivers, and friends participated in this X Strides event.
Families for Fragile X held their first “Fragile X Walk” event on July 20 in Warwick, Rhode Island. More than 50 family members, caregivers, and the general public participated their first X Strides event.
More than 50 families and caregivers participated, including heading to the park splash pad to cool off afterward.
If you’re looking for fundraising ideas, consider these suggestions from Joey Christoff, who recently hosted his fourth “Fishing for a Cure” fundraiser.