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Travel can feel overwhelming — especially when routines change, environments are different, and there is a lot of unexpected input happening around you. We pulled together some resources to support your trip to the 20th International Fragile X Conference in Louisville, KY, this July, but they can be adapted for any upcoming travel.
Mom's Night Out
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Research Funding Opportunities from CDMRP/PRMRP for FY26
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Update from Shionogi on EXPERIENCE Fragile X Clinical Trial
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The holiday season can feel more like survival mode. Changes in routine, packed social calendars, and lack of sleep create unique challenges for individuals with Fragile X syndrome.
Use our customizable “About Me” template to help describe Fragile X to your schoolmates or colleagues.
How to make children with Fragile X syndrome comfortable at your next dinner party or BBQ. Birthday parties are another topic altogether.
Individuals with Fragile X syndrome often have difficulty establishing meaningful friendships. Limited social skills, social anxiety, and an often narrow range of interests contribute to these difficulties. Here, we discuss various interventions that can increase their social network.
Though males experience greater frequency and severity of symptoms, females with FXS present a variety of challenges as well. This article is dedicated to addressing those challenges.
Video modeling utilizes readily available technology to provide a model of appropriate social, language, behavior, or specific targeted daily living or job skills.


