NFXF Blog

Children with Fragile X syndrome struggle more to process and recognize word patterns in speech. Scans show their auditory brain regions — specifically the primary auditory cortex — don’t sync with speech sounds as strongly as other children do.

The holiday season can feel more like survival mode. Changes in routine, packed social calendars, and lack of sleep create unique challenges for individuals with Fragile X syndrome.

Use our customizable “About Me” template to help describe Fragile X to your schoolmates or colleagues.

How to make children with Fragile X syndrome comfortable at your next dinner party or BBQ. Birthday parties are another topic altogether.

Findings showed that sleep difficulties are prevalent in children with FXS and, although they tend to be mild, they are associated with behavioral problems and negative impact to families.

Mouth stuffing is a symptom of other oral motor issues that need to be addressed by your occupational therapist, speech therapist, oral facial myologist, or sometimes two or three of these professionals work­ing in concert.