NFXF Blog
Featured
These strategies are based on the fundamental principles of time-out, while incorporating adaptations that address the fact that children with Fragile X syndrome have language and attention difficulties that are best accommodated through additional considerations for repetition, consistency, and predictability.
‘Fishing for a Cureʼ Reels in Over $20,000 This Year!
12 mins read
FORE! Fragile X Annual Golf Event Raises over $63,000 (So Far!)
05 mins read
RECONNECT Q&A
Mirum Launches Phase 2 Trial of MRM-3379 for Fragile X Syndrome
03 mins read
All Articles
The holiday season can feel more like survival mode. Changes in routine, packed social calendars, and lack of sleep create unique challenges for individuals with Fragile X syndrome.
Use our customizable “About Me” template to help describe Fragile X to your schoolmates or colleagues.
How to make children with Fragile X syndrome comfortable at your next dinner party or BBQ. Birthday parties are another topic altogether.
Findings showed that sleep difficulties are prevalent in children with FXS and, although they tend to be mild, they are associated with behavioral problems and negative impact to families.
Mouth stuffing is a symptom of other oral motor issues that need to be addressed by your occupational therapist, speech therapist, oral facial myologist, or sometimes two or three of these professionals working in concert.
