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These strategies are based on the fundamental principles of time-out, while incorporating adaptations that address the fact that children with Fragile X syndrome have language and attention difficulties that are best accommodated through additional considerations for repetition, consistency, and predictability.
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Behavioral outbursts and aggression are critical incidents in the home or the community. For biological mothers of children with FXS who carry the premutation gene, there is the added predisposition to anxiety, as well as other emotional concerns, which can amplify their response to these critical incidents.
Family caregivers play a critical role in managing the needs of individuals with FXTAS throughout the illness. People with FXTAS rely on caregivers for a wide range of support — preparation of meals, household chores, transportation, medications, bathing, dressing, feeding, physical, emotional and social care, and managing family money.