NFXF Blog

Browse using our topic and condition filters below the featured articles. For more detailed results, please use our Search bar at the top of the page. For webinars, please visit Webinars and Videos.

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Collection of awardees.
  • NFXF & Programs

Our 2026 NFXF Awardees

July 28, 2026
06 mins read

Our 2026 NFXF awards are in! Learn more about each award and the respective awardees.

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LATEST IN: Caregiving
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FXS Tips & Support for Traveling + Free Downloads
June 24, 2026

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Two Letters for Parents With a New Fragile X Syndrome Diagnosis
May 5, 2025

04 mins read

LATEST IN: NFXF & Programs
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FXTAS Neuromotor Signs in Women with the FMR1 Premutation: Elevated Risk at Mid-Range CGGs and Attenuation by College Degree Attainment
September 9, 2026

04 mins read

Characterizing Populations Based on Proximity to a Fragile X Syndrome Specialty Clinic
September 2, 2026

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Talking with Your Daughter About Her Fragile X Syndrome Diagnosis
September 2, 2021
09 mins read

Many families struggle with deciding when the “right” time is and what to say. Here are some strategies to help in having a conversation with your daughter about her Fragile X syndrome diagnosis.

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Three young siblings wearing "Fragile What?" tee shirts.
Talking with Your “Typical” Children About a Sibling’s Fragile X Syndrome Diagnosis
March 30, 2016
06 mins read

Family discussions about the many aspects of Fragile X cannot be boiled down to a single talk. Families do best when there is open and honest communication about Fragile X and we have some tips to help.

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Examining Factors that Lead to Positive Family Adaptation to Fragile X Syndrome
March 28, 2014
08 mins read
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