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These strategies are based on the fundamental principles of time-out, while incorporating adaptations that address the fact that children with Fragile X syndrome have language and attention difficulties that are best accommodated through additional considerations for repetition, consistency, and predictability.
‘Fishing for a Cureʼ Reels in Over $20,000 This Year!
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FORE! Fragile X Annual Golf Event Raises over $63,000 (So Far!)
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RECONNECT Q&A
Mirum Launches Phase 2 Trial of MRM-3379 for Fragile X Syndrome
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The return after a long break can be a difficult transition for anyone, especially an individual living with FXS. With thoughtful planning and a compassionate approach, the entire support team can help ease the process.
Introducing new content to help understand the possible causes of aggressive behavior plus recommendations for how to respond during and following an aggressive incident.
The main aim of this study was to determine whether boys with FXS who had participated in our previous 12-week randomized trial of telehealth-enabled behavioral treatments for challenging behaviors were still benefiting from having received the treatment several years later.
