NFXF Blog
Featured
Congratulations to 2025’s three NFXF Summer Scholars. Meet Susana Lopez-Ignacio, Tanvi Kamra, and Shelby Dauterman!
‘Fishing for a Cureʼ Reels in Over $20,000 This Year!
12 mins read
FORE! Fragile X Annual Golf Event Raises over $63,000 (So Far!)
05 mins read
Mirum Launches Phase 2 Trial of MRM-3379 for Fragile X Syndrome
03 mins read
Relationship Between Intellectual Disability and Behavioral Comorbidity in Children with Fragile X Syndrome
03 mins read
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Action Alert: Help protect Medicaid, a program that provides healthcare coverage and support services for individuals, including those in the Fragile X community.
Reach out to your Members of Congress and stress the critical importance of continued federal support, including NIH funding for Fragile X research.
We are seeing numerous proposed changes this Congress that would have a significant impact on the Fragile X community. It’s more important than ever that your members of Congress hear directly from you — your voice matters.
We understand the uncertainty surrounding recent developments, especially potential changes to federal funding that could impact the Fragile X community. We closely monitor the situation and continue working with our strategic partners to stay informed.