NFXF Blog
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Our 2026 NFXF awards are in! Learn more about each award and the respective awardees.
FXS Tips & Support for Traveling + Free Downloads
06 mins read
Two Letters for Parents With a New Fragile X Syndrome Diagnosis
04 mins read
Congratulations to Our 2026 Jr. Investigators Awardees!
02 mins read
University of Minnesota’s Masonic Institute for the Developing Brain (MIDB)
02 mins read
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Action Alert: Help protect Medicaid, a program that provides healthcare coverage and support services for individuals, including those in the Fragile X community.
Reach out to your Members of Congress and stress the critical importance of continued federal support, including NIH funding for Fragile X research.
We are seeing numerous proposed changes this Congress that would have a significant impact on the Fragile X community. It’s more important than ever that your members of Congress hear directly from you — your voice matters.
We understand the uncertainty surrounding recent developments, especially potential changes to federal funding that could impact the Fragile X community. We closely monitor the situation and continue working with our strategic partners to stay informed.