NFXF Blog

Action Alert: Help protect Medicaid, a program that provides healthcare coverage and support services for individuals, including those in the Fragile X community.

Ensure continued protection for all students, especially members of the Fragile X community.

If you have not been able to join us for Advocacy Day, you can still advocate from home by sharing our Asks with your members of Congress. Be a part […]

The Congressionally Directed Medical Research Program could face a 57% reduction in funding with the proposed continuing resolution.

Reach out to your Members of Congress and stress the critical importance of continued federal support, including NIH funding for Fragile X research.

We are seeing numerous proposed changes this Congress that would have a significant impact on the Fragile X community. It’s more important than ever that your members of Congress hear directly from you — your voice matters.

We understand the uncertainty surrounding recent developments, especially potential changes to federal funding that could impact the Fragile X community. We closely monitor the situation and continue working with our strategic partners to stay informed.

Read and share the latest Fragile X Advocacy Newsletter edition with your Members of Congress offices!

NFXF Executive Director Hilary Rosselot and Advocacy Ambassador to the NFXF Board of Directors Dillon Kelley attended the CEO Commission for Disability Employment’s Employment Summit and Hill Day in September. It was an inspiring, action-packed few days, and they are excited to share more about their experience and why it matters to the Fragile X community with you.