NFXF Blog

Advocacy for the NFXF means listening, learning, asking questions, and making sure the voice of the Fragile X community is part of the conversation.

Our latest advocacy update breaks down what has changed, what hasn’t, and why both federal and state advocacy matter.

Learn what recent federal actions related to Olmstead, the ADA, and Section 504 mean for individuals with disabilities and Fragile X families.

Updates about recent federal policy discussions and what they may mean for Fragile X research, healthcare, education, and support services.

Learn about CDMRP funding opportunities for research on Fragile X-associated conditions and disorders, including application deadlines, key award mechanisms, and how the NFXF supports researchers.

Fragile X has once again been included in the FY26 Peer-Reviewed Medical Research Program (PRMRP) authorized topic list. This continued inclusion ensures that researchers can apply for Department of War awards supporting innovative, high-impact Fragile X research of clear scientific merit.

Action Alert: Help protect Medicaid, a program that provides healthcare coverage and support services for individuals, including those in the Fragile X community.

Ensure continued protection for all students, especially members of the Fragile X community.

If you have not been able to join us for Advocacy Day, you can still advocate from home by sharing our Asks with your members of Congress. Be a part […]