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Travel can feel overwhelming — especially when routines change, environments are different, and there is a lot of unexpected input happening around you. We pulled together some resources to support your trip to the 20th International Fragile X Conference in Louisville, KY, this July, but they can be adapted for any upcoming travel.
Mom's Night Out
‘Fishing for a Cureʼ Reels in Over $20,000 This Year!
12 mins read
Research Funding Opportunities from CDMRP/PRMRP for FY26
03 mins read
Update from Shionogi on EXPERIENCE Fragile X Clinical Trial
04 mins read
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Updates about recent federal policy discussions and what they may mean for Fragile X research, healthcare, education, and support services.
Learn about CDMRP funding opportunities for research on Fragile X-associated conditions and disorders, including application deadlines, key award mechanisms, and how the NFXF supports researchers.
Fragile X has once again been included in the FY26 Peer-Reviewed Medical Research Program (PRMRP) authorized topic list. This continued inclusion ensures that researchers can apply for Department of War awards supporting innovative, high-impact Fragile X research of clear scientific merit.
Action Alert: Help protect Medicaid, a program that provides healthcare coverage and support services for individuals, including those in the Fragile X community.
Ensure continued protection for all students, especially members of the Fragile X community.
The Congressionally Directed Medical Research Program could face a 57% reduction in funding with the proposed continuing resolution.
Reach out to your Members of Congress and stress the critical importance of continued federal support, including NIH funding for Fragile X research.
We are seeing numerous proposed changes this Congress that would have a significant impact on the Fragile X community. It’s more important than ever that your members of Congress hear directly from you — your voice matters.