Xtraordinary people in the lives of those with Fragile XEvery year in July, we come together to celebrate National Fragile X Awareness Month. It’s not only an opportunity for us to bond as a community, it’s a time to open ourselves up to the world and share our individual stories.

To get ready for the big month ahead, we wanted to ask you all to tell us about someone Xtraordinary in your life related to Fragile X.

Yes, we’re talking about self-advocates … and we’re talking about mothers, fathers, siblings, aunts, uncles, cousins, grandparents, and great grandparents. We’re also talking about caregivers, teachers, special educators, doctors, nurses, therapists, and friends who make a positive impact just by being there, and who step up when the need arises.

Nomination Form

We’ve moved the form: Xtraordinary Individuals

Each year, the NFXF and the Fragile X community celebrate all of July as National Fragile X Awareness Month, with the goal of expanding public awareness and educating those who are in a position to help make a difference.

MalloryWe asked to learn more about the Xtraordinary individuals in your lives and here they are. These are all a must-see/must-read!

Learn more

2020 Fragile X Awareness Packets

July is National Fragile X Awareness Month. To help you raise awareness we pulled together some materials that are free to download and use: posters, Zoom backgrounds, coloring sheets, flyer, and “Know Me” cards.